Building Your Dream Team With only two months until the ALS Walk for Life on Saturday, September 20th, now is the time to build your team! Growing your team means you will raise more necessary funds for ALS care, education, …
July 2025 Foundation eNews
Two decades of walking strong — Gary Kravitz and his crew Since 2004, Gary Kravitz has been a constant presence at the ALS Walk for Life. “I’ve signed up 20 years in a row,” he says. “I only missed once—when …
LETTER: Advocating for the Renewal of ALLFTD Study to Propel ALS and FTD Research
The Honorable Richard Hodes, MD, Director of the National Institute on Aging The Honorable Walter Koroshetz, MD, Director of the National Institute of Neurological Disorders and StrokeNational Institutes of Health 9000 Rockville Pike, Bethesda, Maryland 20892 Subject: ALLFTD Renewal Dear Dr. …
Statement: “The One Big Beautiful Bill” Puts ALS Families at Risk
On July 4, 2025, “The One Big Beautiful Bill” was signed into law. It includes deep cuts to healthcare programs that people living with ALS and their caregivers rely on: Medicaid, Medicare, and the Affordable Care Act (ACA). These cuts, …
July 2025 Foundation eNews
Walking for Richie—and for each other For more than a decade, the D’Ambrosia family has come together for the ALS Walk for Life, honoring the man who brought them to the cause. Diagnosed in 2013 and living in Bronzeville near …
