Trevor Storm is no stranger to the fragility of life. As a hospice nurse from Shelbyville, Illinois, a small town of fewer than 5,000 people, he has spent his career helping families navigate their most vulnerable moments. But it wasn’t …
ALS Awareness Month: Crossing the Rainbow: A Son’s Reflection on Caregiving and ALS
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For this final week of May, we’re looking at a day in the …
ALS Awareness Month: Frank Granata on the Financial Toll of this Disease
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the third week of May, we’re looking at the financial cost of …
ALS Awareness Month: “My mom’s diagnosis broke my heart.”
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the second week of May, we’re looking at diagnostic delays, which are …
ALS Awareness Month: “I Knew Something Was Wrong”— Stories of Delayed ALS Diagnosis
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the second week of May, we’re looking at diagnostic delays, which are …
ALS Awareness Month: A Mother’s Day Reflection Balancing ALS and Motherhood
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the first week of May, we’re looking at a day in the …
ALS Awareness Month: Matt Creen’s journey to keep traveling with ALS, no matter what
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the first week of May, we’re looking at a day in the …
Faces of ALS: Jim Halstead, A life of joyful fidelity
At 76 years old, Jim Halstead can no longer move between the lecture halls of DePaul University or preside at Sunday mass like he once did. But his days are still rich with meaning, reflection, and connection—albeit quieter and more …
ALS Awareness Month: Robert Akins on adaptations and living with ALS
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the first week of May, we’re looking at a day …
State of Illinois proclaims ALS Awareness Month in May 2025
At the request of the Les Turner ALS Foundation, Gov. J.B. Pritzker has proclaimed May as ALS Awareness Month in the State of Illinois. The proclamation can be found below and downloaded at this link. Throughout the month, we look …
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