When Wilma Vicari was diagnosed with ALS in the summer of 2025, she didn’t sink into despair. Instead, she turned to her doctor at Northwestern Medicine and said something that left him stunned. Her granddaughter, Lea Vicari, remembers it well. …
May 2026 Foundation eNews
Help us share stories from our community This May, we’re continuing to illuminate the realities of the disease to foster deeper understanding and spark change. Throughout ALS Awareness Month, the focus is on the financial impact, the diagnostic journey, the …
Hope on the baseball diamond: Marc Davidson’s Journey to Lou Gehrig Day
On Lou Gehrig Day, 40-year-old Naperville resident Marc Davidson will take the field at the Rate to deliver the game ball for the Chicago White Sox. For Marc, who was diagnosed with ALS this past December, the moment is about …
May 2026 Foundation eNews
Voices and visions for ALS Awareness Month This May, we’re highlighting the profound realities of the disease to foster deeper understanding and drive meaningful change. Throughout the month, we’re focusing on the significant financial impact, the complex diagnostic journey, the …
State of Illinois proclaims ALS Awareness Month in May 2026
At the request of the Les Turner ALS Foundation, Gov. J.B. Pritzker has proclaimed May as ALS Awareness Month in the State of Illinois. The proclamation can be found below and downloaded at this link. Throughout the month, we look …
April 2026 Foundation eNews
The Hope Through Caring Gala was a smash hit! We are still celebrating the success of our 38th Annual Hope Through Caring Gala held on Saturday, April 11, at the Radisson Blu Aqua Hotel. We are thrilled to share that …
Leading ALS Organizations Celebrate Introduction of ACT for ALS Reauthorization Act: Call for Swift Congressional Passage
Washington, D.C., April 8, 2026 – In support of this week’s introduction of the ACT for ALS Reauthorization Act of 2026 (H.R.8205), leading ALS advocacy organizations released the following statement calling for swift passage of the legislation: “This week’s introduction …
April 2026 Foundation eNews
Join us this Saturday for the Hope Through Caring Gala The 38th annual Hope Through Caring Gala arrives this Saturday, April 11, at the Radisson Blu Aqua Hotel. We are the leader in comprehensive ALS care in Chicagoland, providing individualized …
March 2026 Foundation eNews
Registration is closing soon for the Hope Through Caring Gala Join us on Saturday, April 11, at the Radisson Blu Aqua Hotel for our annual Hope Through Caring Gala. This elegant evening celebrates the courage of families like the Goldbergs …
How Humor and High-Tech Power the Goldberg Home
For Dr. Andrew Goldberg, life has always been about solving complex puzzles. As a former Chief Technology Officer and Vice President at AbbVie, he spent over 30 years bringing technological advances to the world of pharmaceuticals. But today, the 53-year-old …
