Les Turner ALS Foundation

Board of Directors

Our Board of Directors is made up of leaders from the business and civic worlds in Chicagoland. This passionate group of volunteers gives their time, talents and leadership skills to provide strategic direction to the Foundation.

Many members of our Board of Directors have been personally touched by ALS and know what the journey with ALS is like. They are driven by their deep commitment to supporting every person living with ALS, and those they love, every step of the way.

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Kenneth A. Hoffman,* Board Chair, has served on the Board since 2007 and was elected Chair in 2014. He recently retired as the Sr. Vice President of Global Marketing & Innovation at Signode Industrial Group in Glenview. Ken joined the Foundation when his mother, Harriet, passed from ALS in 2003. Ken lives in Deerfield with his wife, Melissa, and has two children.
Thomas F. Boleky,* Vice Chair, joined the Board in 2009. In addition to serving on the Executive Committee and as Chair of the Governance Committee, Tom is an attorney at Beutel Hurst Boleky LLC. His aunt, Irene Mulroy, passed away from ALS 30 years ago. He is a golf and paddle tennis enthusiast and resides in Glenview with his wife, Alissa, and their three children.
John M. Coleman, III, MD,* Vice Chair, has served on the Board since 2018. He is a Pulmonary & Critical Care Physician at Northwestern Medical Group, working in the Lois Insolia ALS Clinic and caring for people living with ALS. In addition to serving on the Executive Committee, John chairs the Support Services Committee. He currently resides in Chicago with his husband, James.
Robin Fern,* Vice Chair, joined the Board in 2012 and became a part of the Foundation after her father was diagnosed with ALS in 2008. She is a member of the Board’s Executive Committee and chairs the Development & Communications Committee. Robin currently resides in Chicago with her partner, Michael.
Joel A. Schechter,* Vice Chair, joined the Board in 1988 and is an attorney at the Law Offices of Joel A. Schechter. The brother-in-law of Les Turner, Joel serves on the Board’s Executive Committee and is a member of the Governance and Support Services Committees. He lives in Chicago with his wife, Bambi Jacoby, and has five children.
Janene Jonas,* Secretary, joined the Board in 2017. She is a founding member of the Foundation’s Young Professionals Group (YPG), serves on the Executive Committee and is a member of the Governance Committee. She was a caregiver to her maternal grandfather who died of ALS in 2000. Janene has three children and, in her free time, enjoys family bike rides, weekends at her house in Beverly Shores, IN, and gardening. She currently resides in Chicago with her husband, Joe.
Harvey Gaffen,* Treasurer and Chair Emeritus, is a founder of the Les Turner ALS Foundation and has served on the Board since its inception in 1977 after his brother-in-law and best friend, Les Turner, was diagnosed with ALS. He serves on the Board’s Executive Committee and chairs the Audit & Finance Committee. Harvey also serves on the Board of Directors for Helping Adults with Autism Perform and Excel in Weston, FL and First Bank Highland Park. Harvey has three children and resides in Highland Park with his wife, Bonny.
Matthew Brown has served on the Board since 2004.  He is a partner at Katten Muchin Rosenman LLP specializing in mergers and acquisitions and serves on the Board’s Audit & Finance Committee. Matthew’s uncle passed away from ALS. Matt has three children and lives in Chicago with his wife, Deborah.
Erin Reardon Cohn joined the Board in 2019 and is a member of the Audit & Finance Committee. She is an Executive Vice President at First Bank Chicago, a division of First Bank Highland Park and serves as an Advisory Board Member for the Catholic Charities of the Archdiocese of Chicago. One of her close family friends had ALS. Erin has two children and currently resides in Chicago with her husband, Jon.
Deborah Crockett joined the Board in 2017 and is a member of the Governance Committee. Deborah became acquainted with the Foundation after her sister, Michelle Crockett, had been diagnosed with ALS and was a patient at the Lois Insolia ALS Clinic. She is the Vice President of Information Technology at Ariel Investments and lives in Chicago. Deborah is an avid reader, amateur gardener and chef, and loves to travel.
Bonny J. Gaffen, sister-in-law of Les Turner and a founder of the Les Turner ALS Foundation, has served on the Board since 1986. Bonny also serves on the Board of Directors for Helping Adults with Autism Perform and Excel, located in Weston, FL. She is a co-captain for Glenview Tag Days as well as co-captain for the ALS Walk for Life team, ABOUT LES’ SPIRIT. Bonny lives in Highland Park with her husband, Harvey, and has three children.
Jodi M. Harris joined the Board in 2019.  A former attorney in government affairs, she currently serves on the Board’s Governance and Development & Communications Committees. Jodi and her husband, Jonathan, have participated in the Foundation’s ALS Walk for Life for many years and currently reside in Chicago with their two children.
Daniel Libit joined the Board in 2018. Daniel serves on the Board’s Development & Communications Committee and works as a journalist at The Intercollegiate, which he founded in 2019. His mother, Susan, died of ALS in 2016. Daniel has one child and lives in Highland Park with his wife, Ashley.
Joshua P. Newsome joined the Board in 2012. He is a Managing Director at Goldman Sachs and serves on the Board’s Audit & Finance Committee. His father, Jon Newsome, is currently living with ALS. Josh has three children and resides in Winnetka with his wife, Benagh.
Diana Pisone joined the Board in 2019.  She heads the Chicago office of Ted Moudis Associates and serves on the Board’s Development & Communications Committee. Diana’s father had ALS and was a patient at the Lois Insolia ALS Clinic. Diana has participated in the Foundation’s ALS Walk for Life for many years and lives in Chicago with her partner, Scott Brady.
Mary Lou Pisone has served on the Board since 2010. She is a member of the Board’s Governance Committee and is a Programmatic Reviewer for the Congressionally Directed ALS Research Program. Her husband had ALS and was a patient at the Lois Insolia ALS Clinic. Mary Lou has two children and resides in Countryside.
Philip Schwarz joined the Board in 2017. He is a meteorologist at WLS-TV and currently serves on the Board’s Development & Communications Committee. Phil lost both a grandmother and uncle to ALS. He has two children and resides in Elmhurst with his wife, Michelle.
Sarvesh Soi has served on the Board since 2019. He is a Principal of Wealth Practice at Buck Global, LLC and serves on the Board’s Audit & Finance Committee. Before joining the Board, Sarvesh was a longtime member of the Foundation’s Young Professionals Group (YPG). He currently resides in Chicago.
Melissa Wilder joined the Board in 2019. She serves on the Support Services Committee, and became acquainted with the Foundation when her sister, Mindy Evans Williams, was diagnosed with ALS in 1992. Melissa is self-employed and has been training in martial arts for over 27 years. She has two children and lives in Manhattan, IL with her husband, John.

* Denotes member of the Executive Committee

 

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