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ALS Learning Series: A Conversation with a Genetic Counselor

January 31 @ 12:00 pm - 1:00 pm

Wednesday, January 31, 2024, 12:00 p.m., CST 

The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation, Mitsubishi Tanabe Pharma America & Biogen for sponsoring this webinar.

About the Presentation:

Navigating ALS care can be complicated and filled with many complex decisions, including whether genetic testing is right for you. Join us for a discussion with genetic counselor Laynie Dratch, ScM CGC, as she describes the role of a genetic counselor and addresses common questions about the genetics of ALS-FTD spectrum disorders, the genetic testing process, and more. Laynie welcomes you to come with questions for discussion.

About the Speaker:

Laynie Dratch, ScM CGC

Laynie Dratch, ScM CGC is a board-certified genetic counselor for the Penn Frontotemporal Degeneration (FTD) Center and Penn Amyotrophic Lateral Sclerosis (ALS) Center in the Department of Neurology at the University of Pennsylvania. She is the co-founder and chair of the ALS/FTD Working Group within the National Society of Genetic Counselor’s Neurogenetics group, as well as the co-founder of the annual Penn Familial FTD/ALS Conference. Her research interests include the lived experiences of individuals at risk of developing ALS/FTD spectrum disorders, and genetic counseling access and service delivery. Laynie completed her master’s in genetic counseling at the Johns Hopkins University / National Institutes of Health genetic counseling training program and completed her undergraduate studies at Colgate University where she graduated summa cum laude with a BA in neuroscience and a minor in psychology. 


January 31
12:00 pm - 1:00 pm


© Les Turner Amyotrophic Lateral Sclerosis Foundation, Ltd.

The Les Turner ALS Foundation is a non-profit corporation under section 501(c)(3) of the U.S. Internal Revenue Code, EIN 36-2916466


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