ALS Learning Series

Chelsey R. Carter is an Assistant Professor of Public Health in the Department of Social and Behavioral Sciences at Yale University, with a secondary affiliation in the Department of Anthropology. Her research program examines how scientific knowledge production, clinical care, and systemic marginalization impact historically underrepresented communities affected by rare and neurodegenerative diseases like ALS.

Dr. Carter is also undertaking a book project tentatively titled, Finding the Forgotten: Race, Bias, and Care in the World of ALS, which includes an ethnographic study of the diverse experiences of living with ALS, and draws on over 15 years of experience with Black communities affected by ALS. She is Founder & Director of The LEITH (Lived Experiences Igniting Transformations in Health) Lab.