Support Services

Dan Nelson Respite Grant Program

The Dan Nelson Respite Grant Program offers financial reimbursement to people with ALS, who demonstrate financial need to help a portion the cost of respite care.

You may request an online application from your ALS Support Services Coordinator or the Les Turner ALS Foundation' Chief Advocacy and Outreach Officer.


  • Grants are available to people with ALS who demonstrate financial need to help defray the cost for respite care.
  • In order to apply for a grant, you must attend the Lois Insolia ALS Clinic at Northwestern Medicine. In addition, you must speak with a member of our Support Services team to determine need and to explore caregiver options.
  • All existing sources for obtaining the requested equipment will be explored before grants are approved. Please work with your ALS Support Services coordinator to identify community resources or help with insurance navigation.
  • You may apply for a respite grant annually.

For more information, to apply or for eligibility requirements on any of these programs, contact us at or call 847 679 3311.

About the Dan Nelson Respite Grant Program

Sheila McCullough generously and thoughtfully established this fund in 2012 to honor the memory of her husband Dan and his first caregiver, Thea. “Thea is Dan’s older sister and the reason I wanted to put this fund together.” The program is designed to provide grants for short-term respite care for families with limited resources. Respite care provides the primary caregiver with time away from their care duties. This promotes well-being for both the caregiver and person with ALS and helps prevent caregiver burnout. Participants in the program also receive a visit from one of the Foundation’s ALS Support Services coordinators.

For more information, to apply or for eligibility requirements, contact us at or call 847 679 3311.

Pictured: Dan Nelson and his sister, Thea. Dan passed away from ALS in January 2012.

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