Support Groups & Education
The Foundation provides several opportunities for people living with ALS and their families to come together, offering support to each other and receiving the professional advice and guidance of the Foundation’s ALS Support Services Coordinators.
Monthly free support groups allow people living with ALS and caregivers to give and receive emotional support and to share information and practical experience. Groups are professionally facilitated and participants are encouraged to express their feelings about ALS openly—whether it’s with fear, anger, guilt, sadness or any other emotions. Support groups provide a welcoming environment and a sense of camaraderie with others who are living with this devastating disease. Currently, the Foundation offers support groups in five different areas of Chicagoland.
Support group meetings are open to people living with ALS, family members, caregivers and friends. Each facility is wheelchair accessible and offers free parking. We request that you RSVP if you are planning to attend any of these meetings to assure there is availability. Alternatively, if no one responds, meetings will not be held.
Please contact Laurie Fieldman at LFieldman@lesturnerals.org or 847 679 3311 to RSVP, for more information on any support groups or meetings, or to be placed on our support group mailing list.
Plus, watch this Facebook Live video of Anne Lidsky, PHD, ALS Support Services Coordinator and one of our support group leads for over 30 years, share her own family’s experience with ALS and the importance of open and honest conversations.
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Presentations & Webinars:
2019 ALS News You Can Use Educational Meeting
Presentation slides coming soon
2018 ALS News You Can Use Educational Meeting
Legal Care for Living with ALS
(Helen Mesoloras, JD, Elder and Disability Attorney and Partner with Dutton & Casey, Attorneys at Law)
NEALS Consortium Presents:
How Professionals Can Help the Kids in ALS Families
(Laurie B. Fieldman, LCSW, Director of Social Services)
Proactive Collaborative Considerations of Augmentative Communication Tools and Strategies
(John M. Costello, MA, CCC-SLP, ALS Augmentative Communication Program, Boston Children’s Hospital)
Nutrition and ALS
(Anne-Marie Wills, MD, MPH, Massachusetts General Hospital and Jane Hubbard, MS, RD, LDN, Massachusetts General Hospital)
Treating Respiratory Dysfunction in ALS
(Dr. Christopher Lee, Vanderbilt University Medical Center)
Cured by Curcumin? Untangling another ALS X-file
(Richard Bedlack, MD, PhD, Ducke ALS Clinic)