Support Services

Support Groups & Education

The Foundation provides several opportunities for people living with ALS and their families to come together, offering support to each other and receiving the professional advice and guidance of the Foundation’s ALS Support Services Coordinators.

You Are Not Alone

Many people find a peer support group to be a safe space to help navigate and manage the difficulties in their lives. Faced with similar challenges, participants of support groups understand, on a deeper level, what other members are feeling and experiencing without the need for explanation. A support group can help its members cope better and feel less isolated as they are surrounded by others who are undergoing a similar situation. Group members typically share their personal experiences and offer one another emotional comfort and moral support. Support group leaders are present to offer guidance and disease education as well as encouraging conversations to continue in a direction that is of interest and benefit to the entire group.

The Foundation has formed its support groups to offer people and families living with ALS a support system outside their immediate circle, to make connections with others and offer a place for members to gain additional emotional support and practical advice for their situation.

Online Support Groups

The safety of our Les Turner ALS family, especially those living with ALS, is our top priority. Due to the current Coronavirus (COVID-19) outbreak, we are currently offering online support groups. We will provide an update when in-person Support Groups are able to resume.

To learn more about ALS and COVID-19, visit our website here.

All support group meetings, both in-person and virtual, are open to people living with ALS, family members, caregivers and friends.

For more information about any support groups or meetings, or to be placed on our support group mailing list and/or to RSVP to a group, please contact us at supportgroups@lesturnerals.org. We look forward to hearing from you!

Share this Page

Have a specific question you need answered?
Email Us Your Question

Ensuring Our Support Groups for Years to Come

Learn more about the Ileane Mindel Support Group Fund and how to make a donation, here.

Education

Presentations & Webinars:

Northwestern’s  Second Annual Updates in the Diagnosis and Management of ALS
Friday, September 20, 2019
View Presentations

2019 ALS News You Can Use Educational Meeting
Healthy Brain, Healthy Nerves
(Jinny Tavee, MD, Medical Director, Neuromuscular Division, Director, Associate Professor, Northwestern University Feinberg School of Medicine)

2018 ALS News You Can Use Educational Meeting
Legal Care for Living with ALS
(Helen Mesoloras, JD, Elder and Disability Attorney and Partner with Dutton & Casey, Attorneys at Law)

Northeast ALS (NEALS) Consortium Educational Webinars
Join Upcoming and View Archived Webinars

Respiratory Videos: 

Video 1- Developing a Care Plan
Video 2- Respiratory Support Options
Video 3- Your Decisions for Your Quality of Life
Ventilation- The Decision Making Process


Care. Community. Cure.

We provide individualized care, local community support and hope through
scientific research.