Support Services

Support Groups & Education

The Foundation provides several opportunities for people living with ALS and their families to come together, offering support to each other and receiving the professional advice and guidance of the Foundation’s ALS Support Services Coordinators.

Support Groups

Monthly free support groups allow people living with ALS and caregivers to give and receive emotional support and to share information and practical experience. Groups are professionally facilitated and participants are encouraged to express their feelings about ALS openly—whether it’s with fear, anger, guilt, sadness or any other emotions. Support groups provide a welcoming environment and a sense of camaraderie with others who are living with this devastating disease. Currently, the Foundation offers support groups in five different areas of Chicagoland.

Support group meetings are open to people living with ALS, family members, caregivers and friends. Each facility is wheelchair accessible and offers free parking. We request that you RSVP if you are planning to attend any of these meetings to assure there is availability. Alternatively, if no one responds, meetings will not be held.

Please contact us at SupportServices@lesturnerals.org or 847 679 3311 to RSVP, for more information on any support groups or meetings, or to be placed on our support group mailing list.

Read why the Foundation believes support groups are important.

Plus, watch this Facebook Live video of Anne Lidsky, PHD, ALS Support Services Coordinator and one of our support group leads for over 30 years, share her own family’s experience with ALS and the importance of open and honest conversations.

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The safety of our Les Turner ALS family, especially those living with ALS, is our top priority. Due to the current Coronavirus (COVID-19) outbreak, with an abundance of caution, we are cancelling all in-person Les Turner ALS Foundation Support Groups until further notice. We will be hosting virtual support groups, so please stay tuned for further details. Thank you for your understanding.

We will provide an update when in-person Support Groups are able to resume. For further information on how to safeguard yourself and your families during this time, as well as updates for our ALS community regarding the COVID-19 pandemic, please visit out COVID-19 Homepage


Education

Presentations & Webinars:

Northwestern’s  Second Annual Updates in the Diagnosis and Management of ALS
Friday, September 20, 2019
View Presentations

2019 ALS News You Can Use Educational Meeting
Healthy Brain, Healthy Nerves
(Jinny Tavee, MD, Medical Director, Neuromuscular Division, Director, Associate Professor, Northwestern University Feinberg School of Medicine)

2018 ALS News You Can Use Educational Meeting
Legal Care for Living with ALS
(Helen Mesoloras, JD, Elder and Disability Attorney and Partner with Dutton & Casey, Attorneys at Law)

Northeast ALS (NEALS) Consortium Educational Webinars
Join Upcoming and View Archived Webinars

Respiratory Videos: 

Video 1- Developing a Care Plan
Video 2- Respiratory Support Options
Video 3- Your Decisions for Your Quality of Life
Ventilation- The Decision Making Process


Care. Community. Cure.

We provide individualized care, local community support and hope through
scientific research.