Since 1977, the Les Turner ALS Foundation has been Chicagoland's leader in patient services, research, and education for Amyotrophic Lateral Sclerosis (ALS), better known as Lou Gehrig's Disease, and other motor neuron diseases (MND).
FDA Statement About Genervon's Experimental Drug
The FDA has released a statement today regarding the status of Genervon’s experimental drug, GM604. The FDA requests Genervon “to release all the data from their recently completed trial in order to allow a more informed discussion of the trial findings among ALS Stakeholders. Such a release should include the pre-specified clinical outcome measures as assessed by change from baseline observations that were taken just prior to randomization to drug or placebo.” The full statement can be found on the FDA website.
Celebrate National Volunteer Week
The Les Turner ALS Foundation is spending National Volunteer Week, April 12-18, recognizing all our inspiring volunteers. Throughout the week, we will be highlighting various Les Turner ALS Foundation volunteers who are just a small example of the impact that can be made when we work together to accomplish a common goal. Visit our Facebook page to learn about these individuals.
Les Turner ALS Foundation Family Day
Join the Les Turner ALS Foundation Patient and Family Advocates and Staff for an afternoon of bowling, pizza and special activities Saturday, June 14, 2015! The day will focus on fun and camaraderie for PALS, their children and grandchildren at no cost.
Click HERE to see the event flyer.