ALS Learning Series

The Gift of Discovery: Tissue Donation and the Future of ALS Research

March 26, 2026

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Lyle W. Ostrow, MD, PhD is a neurologist, ALS researcher, and Director of the Neuromuscular Pathology Lab at the Lewis Katz School of Medicine at Temple University. He is Director of the Temple ALS Postmortem Core, which is funded by a collaboration with the CDC National ALS Registry to provide autopsy tissue samples, slides, and data to ALS researchers around the world. He serves on the Scientific Advisory Boards for Everything ALS and the ALS Network, and the Board of Directors of the ALS Hope Foundation. Dr. Ostrow is also the longstanding Chair of the Programmatic Panel for the Congressionally Directed Medical Research Program (CDMRP) on ALS (the ALSRP), presently the largest dedicated annual funder of ALS therapeutic discovery and validation. He led ALSRP efforts to develop and refine funding mechanisms to help novel treatments move though the drug development pipeline, emphasize biomarker development, and encourage open data and resource sharing. He has ALS research grant funding from NIH, serves on several ALS steering committees and review panels, and has given 60+ invited talks, grand rounds, and keynote lectures on ALS research, biomarker development, postmortem tissue biobanking, and harmonizing multicenter research efforts and core resources.

Tissue donation is one of the most powerful contributions a person living with ALS can make to future generations. Join Dr. Lyle Ostrow from Temple University who will discuss the tissue donation process, address common questions and concerns, explain what researchers can learn from donated tissue, and share how those interested can make arrangements. 

The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Tanabe Pharma America for sponsoring this webinar. 

ALS Learning Series

ALS Learning Series Sponsors

The ALS Learning Series is made possible by a generous donation from the Gilbert and Jacqueline Fern Foundation and our industry partners.
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