Support Services Team
The Foundation’s Support Services Team are available at no cost to people living with ALS, their families and caregivers who reside in the Foundation’s service area, which includes, Chicago and its surrounding communities as well as portions of northwest Indiana.
- Home visits by ALS Support Services Coordinators
- Telephone, e-mail and referral support
- Support group meetings for people living with ALS, families and caregivers
- Educational materials and programs
- Coordinate care with providers at the Lois Insolia ALS Clinic
Our ALS Support Services Coordinators consist of nurses and social workers who can:
- Visit in the comfort and privacy of a person’s residence to provide ongoing information and support and coordination of services
- Schedule virtual appointments, face-to-face from the convenience of one’s home via Skype or FaceTime
- Enhance the continuity of care between clinic visits
- Provide ongoing disease education and address specific concerns
- Provide practical information on quality of life and daily living
- Evaluate home environment for safety, adaptations and equipment needs
- Facilitate communication between patient, family members and healthcare team
- Educate regarding disability, Medicare, Medicaid, private insurance and other financial options
- Guide access to care through state programs, caregiver services and explore additional means to maximize assistance
- Assist with advanced directives, including living wills, medical power of attorney and other end-of-life issues
- Provide social service counsel and intervention to improve communication and assist in conflict resolution
- Collaborate with home health agencies, hospices and other community organizations
- Conduct in-service education for home health agencies, hospices, case management groups, assisted living facilities, nursing facilities, employers, schools and other community organizations
Additional Program Services:
- Durable medical equipment and communication loan banks
- Walter Boughton Foundation Support Services Grants
- Dan Nelson ALS Respite Grant Program
- Stuart Rosen ALS Transportation Program
*For more information about these programs and eligibility requirements, please contact us at 847 679 3311 or firstname.lastname@example.org. The Foundation’s goal is to help people living with ALS and their family members deal with all aspects of this difficult disease.
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If you require emergency medical attention, please call 911 to access your local emergency services.
For all other urgent medical matters and if you are seen at the Lois Insolia ALS Clinic, please call Northwestern Medicine at 312.695.7950 and ask to page the neuromuscular physician on call.