Support Services

Support Services Team

The Foundation's Support Services Team are available at no cost to people living with ALS, their families and caregivers who reside in the Foundation’s service area, which includes, Chicago and its surrounding communities as well as portions of northwest Indiana.

The Les Turner ALS Foundation exists to care for those affected by the disease, guide them to answers, support them and their loved ones and provide hope through scientific research.

The Les Turner ALS Foundation provides:

  • Personalized care visits by ALS support services coordinators
  • Support meetings for people living with ALS, families and caregivers
  • Educational materials and programs
  • Access to medical equipment and communication devices
  • Need-based grants and equipment loans

How Can the Support Service Team Help me?

  • Enhance the continuity of care between clinic visits at the Lois Insolia ALS Clinic
  • Provide ongoing disease education and address specific concerns
  • Provide practical information on quality of life and daily living
  • Evaluate home environment for safety, adaptations and equipment needs
  • Facilitate communication between person with ALS, family members and ALS care team
  • Educate regarding disability, Medicare, Medicaid, private insurance and other financial options
  • Guide access to care through state programs, caregiver services and explore additional means to maximize assistance
  • Assist with advanced directives, including living wills, medical power of attorney and other end-of-life topics
  • Provide social service counsel and intervention to improve communication and assist in conflict resolution
  • Collaborate with home health agencies, hospices and other community organizations
  • Conduct in-service education for home health agencies, hospices, case management groups, assisted living facilities, nursing facilities, employers, schools and other community organizations

Grant Programs & Equipment Loans

The Les Turner ALS Foundation offers a variety of financial assistance to people living with ALS and their families. This includes the Walter Boughton Foundation Support Services Grants (equipment and necessary home modifications), the Dan Nelson Respite Care Grant Program, Assistive Technology Grant and the Stuart Rosen ALS Transportation Fund.

*For more information about these programs and eligibility requirements, please contact us at 847 679 3311 or The Foundation's goal is to help people living with ALS and their family members deal with all aspects of this difficult disease.

To view the bios of our ALS Support Services Coordinators, visit here.

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If you require emergency medical attention, please call 911 to access your local emergency services.

For all other urgent medical matters and if you are seen at the Lois Insolia ALS Clinic,  please call Northwestern Medicine at 312.695.7950 and ask to page the neuromuscular physician on call.

Read our Faces of ALS feature on Easton Stevenson, LCSW, and Cara Gallagher, MA, LCPC, two members of the Support Services Team. 

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Care. Community. Cure.

We provide individualized care, local community support and hope through
scientific research.