Les Turner ALS Foundation
News & Resources
Foundation Blog
Leaning on Family, Faith, and Community
For Satrina Bryant-Higgins, family is everything. Her three children and …Read More »$40M for ALS in FY25: A Hard-Earned Victory
We are grateful to share that ALS has been recommended …Read More »ALS organizations advocate for FY26 funding priorities to Congress
Delivered to the offices of Sen. Susan Collins and Sen. …Read More »UPDATED: Statement on Proposed Cut to Congressionally Directed Medical Research Program for FY2025
Updated: On March 14, 2025, the Senate passed a bill …Read More »
Faces of ALS
Never back down, never give up: Ken Trent
For Ken Trent and his family, those six words—never back …Read More »When lives are on the line
Bryan Szymczak has always run toward danger. For 26 years, …Read More »Faces of ALS: A Veteran Nurse’s Journey of Service and Strength
Connie Daniels has dedicated much of her life to caring …Read More »Gordon Scully: Racing Towards a Cure for ALS
In the fast-paced world of professional racing, few drivers transcend …Read More »Up to the Challenge: The Hernandez Family
Caring makes the difference. For Mario Hernandez, it starts …Read More »
Advocacy
$40M for ALS in FY25: A Hard-Earned Victory
We are grateful to share that ALS has been recommended …Read More »ALS organizations advocate for FY26 funding priorities to Congress
Delivered to the offices of Sen. Susan Collins and Sen. …Read More »UPDATED: Statement on Proposed Cut to Congressionally Directed Medical Research Program for FY2025
Updated: On March 14, 2025, the Senate passed a bill …Read More »LETTER: Neuromuscular Advocacy Groups Oppose NIH Indirect Cost Cap of 15%
On behalf of the approximately 300,000 Americans living with a …Read More »
Research News
UPDATED: Statement on Proposed Cut to Congressionally Directed Medical Research Program for FY2025
Updated: On March 14, 2025, the Senate passed a bill …LETTER: Neuromuscular Advocacy Groups Oppose NIH Indirect Cost Cap of 15%
On behalf of the approximately 300,000 Americans living with a …URGENT: Tell Congress to Oppose Catastrophic Research Cuts
The National Institutes of Health (NIH) recently announced a major …Introducing the New Participating in Clinical Research Tool
Deciding whether to participate in clinical research is a pivotal …
Donor Spotlights
Donor Spotlight: Ann Drury
Every ALS diagnosis has a story of its own. For …Our Boughton Grant Program makes home modifications easier
As a licensed cosmetologist and hairdresser for 19 years, Janie …Donor Spotlight: Foglia Family Foundation
As a lifelong baseball fan, Vince Foglia knew about ALS …Donor Spotlight: Robert P. Ives
Robert “Bob” P. Ives is a familiar face at the …
Foundation eNews
March 2025 Foundation eNews
A night of hope and celebration with Paul Lisnek The …Read More »February 2025 Foundation eNews
Join us for “The Impossible Dream” We are thrilled to …Read More »February 2025 Foundation eNews
Celebrating a force for change At the Hope Through Caring …Read More »January 2025 Foundation eNews
Save the date: Hope Through Caring Gala Mark your calendars …Read More »
