Save the date: Hope Through Caring Gala
Mark your calendars for the 37th annual Hope Through Caring Gala on Saturday, April 5 at the stunning Radisson Blu Aqua Hotel in Chicago. This unforgettable evening brings together ALS researchers, care teams, business leaders, and, most importantly, families impacted by ALS to celebrate progress and hope.
Enjoy a special performance by award-winning actor and singer Aaron Lazar as he presents his musical journey of healing in the face of ALS. We’ll also honor Brian Davis and Katy McNeil with the Hope Through Caring Award for their incredible fundraising efforts, and Jean Swidler and Mindy Uhrlaub with the Harvey and Bonny Gaffen Advancements in ALS Award for their advocacy on behalf of the genetic ALS and FTD community.
Join us for a night of inspiration and impact. Click here to learn more and register now!
Find support after an ALS diagnosis
Set in a relaxed and supportive virtual environment, this group connects those diagnosed within the last six months. Led by Cara F. Gallagher, MA, LCPC, participants can share experiences, ask questions, and find comfort in knowing they are not alone. “When people come together, they feel less alone and can support each other, creating a foundation that can lay the groundwork for navigating this journey,” says Gallagher.
Meetings take place on the first Tuesday of each month from 6 to 7 p.m. CST.
If you or someone you know has been recently diagnosed with ALS, please share this resource with them. To learn more and register, click the link.
Join us on Thursday, Jan. 30 for the first ALS Learning Series of the year, featuring Reshma Punjani, MPH, and Janie Gobeli. Together, they’ll explore how the National ALS Registry advances research and provides valuable insights into the causes and progression of ALS.
You’ll learn:
- How to join the National ALS Registry and why it matters.
- Insights into data collection, ongoing research, and its impact.
- Janie’s personal experience with the registry as an ALS advocate.
- A Q&A session will follow, giving you the chance to ask your questions directly.
This webinar is presented at no cost thanks to the Gilbert & Jacqueline Fern Foundation, Biogen, and Mitsubishi Tanabe Pharma America.
Register now to secure your spot and learn how you can contribute to the fight against ALS.
The National ALS Registry empowers people living with ALS to contribute to research that could lead to better treatments and a deeper understanding of the disease.
By joining the Registry, you help researchers estimate how many people are living with ALS, identify potential causes, and explore factors that influence disease progression. Participants can share their stories, complete risk factor surveys, and even donate specimens to the National ALS Biorepository. These efforts play a critical role in advancing science and providing answers for future generations.
Guide spotlight: ALS & Activities of Daily Living
Living with ALS brings unique challenges, especially when it comes to everyday tasks like eating, dressing, and mobility. The ALS and Activities of Daily Living Guide offers practical tips and tools to help people with ALS maintain independence and improve their quality of life.
This comprehensive resource covers a wide range of topics, from adaptive equipment and home modifications to techniques for conserving energy. Whether you’re learning about specialized utensils for easier eating or exploring ways to navigate your home more safely, the guide provides actionable solutions for everyday challenges.
Developed with input from ALS care experts and people living with ALS, this guide empowers individuals and their caregivers to approach daily tasks with confidence and dignity.
Visit our website to explore this valuable resource and discover tools to support your ALS journey.
