In support of National Family Caregivers Month, The Les Turner ALS Foundation highlights Sherlyn Brubeck: caregiver of her husband, Ryan Brubeck, PALS and friend of the Foundation. ALS not only drastically alters the patient’s life; it also transforms the lives …
Celebrating 30 Years: The Lois Insolia ALS Clinic at Northwestern
The Lois Insolia ALS Clinic at Northwestern Medicine has continuously provided total care and support of people with ALS, their families and their caregivers for the last 30 years. During those three decades, the Lois Insolia ALS Clinic has received support …
Dr. Ozdinler Invited to Speak at the Nobel Forum in Stockholm, Sweden
Dr. Hande Ozdinler was recently invited to speak at the Nobel Forum Karolinska Instituetet in Stockholm Sweden which took place in early September. The title of her abstract which was chosen as a platform discussion was, “Unfolded proteins: from basic …
FDA Accepts New Drug Application Filing for Edaravone to Treat ALS
Mitsubishi Tanabe Pharma Corporation has announced that the FDA accepted the company’s New Drug Application for edaravone (MCI-186) which is an intravenous treatment for ALS. Based on the Prescription Drug User Fee Act, a decision is expected to be made …
Cytokinetics Completes Enrollment in VITALITY-ALS
Thank you to all the ALS patients who have volunteered to participate in the Cytokinetics Phase III clinical trial of tirasemtiv in ALS at the Lois Insolia ALS Clinic at the Les Turner ALS Research and Patient Center at Northwestern …
Guidelines for Clinical Trials in ALS/MND – 2016 update
This past March, 140 international thought leaders in the field of ALS met at the ALS Clinical Trials Guidelines 2016 Workshop. Among those in attendance included Dr. Teepu Siddique and Dr. Senda Ajroud-Driss on behalf of the Les Turner Research …
A summer of groundbreaking genetic discoveries in ALS
It has been a summer of groundbreaking genetic discoveries in ALS! In July, the Les Turner ALS Research and Patient Center at Northwestern Medicine shared the news from the lab of Dr. Teepu Siddique of the discovery of a third …
From Generation to Generation: Embodying the True Spirit of “Paying it Forward”
While out on a bike ride, Barrington community member Bob Lee came up with an idea called the Ride for 3 Reasons after being inspired by Mitch Albom’s Tuesdays with Morrie. During 12,000 mile journey across the country, Bob had …
Today’s Caregiver: 5 Lessons I Have Learned From Being A Young Caregiver For My Husband With ALS
Wife of PALS, Sherlyn Brubeck recently shared the five lessons she has learned from being a caregiver to her husband with Today’s Caregiver. Since being diagnosed with ALS in 2014, Sherlyn has become her husband’s primary caregiver. To read the …
Adjacent Government: Helping ALS patients is not only a medical need, but also a moral obligation
An article by Dr. Hande Ozdinler was published in Adjacent Government which provides a unique look at the complexities of ALS as well as the limitations researchers face as they search for a cure. Having funds for research is crucial …
