For fifteen years, Darryl Carradine lived thinking he had Multiple Sclerosis. But something didn’t seem right. His symptoms kept getting worse and he wasn’t getting the help he needed. In a rare twist of fate, Darryl met the doctor who …
Updates for 2018
New ALS Research Laboratory – The Les Turner ALS Research and Patient Center will add a fourth lab to support the research of the Center Director, Robert Kalb, MD. The lab will focus on activity-dependent development of circuits in the …
Join the ALS Registry
In the next year alone, about 5,000 people in the U.S. may be diagnosed with #ALS. The National #ALSRegistry is connecting persons living with ALS with researchers who want to find the causes of the disease, help those diagnosed, and …
Radicava FAQs
Les Turner ALS Research and Patient Center at Northwestern Medicine On May 5, the FDA approved a new drug to treat ALS. Radicava™ (also known as Edaravone) is the first approved ALS-specific drug since Riluzole, which was approved 22 years …
PALS Webinar: How Professionals Can Help Kids in ALS Families
On April 5, our Director of Social Services, Laurie B. Fieldman, LCSW, led a Northeast ALS Consortium (NEALS) webinar, sharing her expertise on how to minimize the impact on children in ALS families. Many professionals don’t get the opportunity to …
2017 ALS News You Can Use
This past Sunday, March 19, the Foundation hosted our annual educational meeting that covered the latest on ALS research and patient care from experts in the field. Over 40 people including staff and board members, people living with ALS and …
A Time for Thanks: November is National Caregivers Month
In support of National Family Caregivers Month, The Les Turner ALS Foundation highlights Sherlyn Brubeck: caregiver of her husband, Ryan Brubeck, PALS and friend of the Foundation. ALS not only drastically alters the patient’s life; it also transforms the lives …
Celebrating 30 Years: The Lois Insolia ALS Clinic at Northwestern
The Lois Insolia ALS Clinic at Northwestern Medicine has continuously provided total care and support of people with ALS, their families and their caregivers for the last 30 years. During those three decades, the Lois Insolia ALS Clinic has received support …
ALS Walk for Life Sponsor Announces New Collaboration
The Les Turner ALS Foundation is happy to share great news about one of our ALS Walk for Life event sponsors, Cytokinetics. The drug development company has finalized a deal to collaborate with global pharma company, Astellas to conduct further research …
