Foundation News FDA Advisory Committee meeting on tofersen, an SOD1-ALS treatment set for March 22 The U.S. Food and Drug Administration (FDA) will hold an advisory committee meeting on March 22 to review Biogen’s New Drug Application (NDA) for accelerated …
February 2023 Foundation eNews
Foundation News Calming the destructive cells of ALS One of the reasons that ALS can progress quickly is that certain types of cells in the human body will attack diseased upper motor neurons, which are needed to initiate movement. Once …
Faces of ALS: A mother’s love
Chaunelle Caver-Perkins and her family will be among the guests at the 35th annual Hope Through Caring Gala this Saturday, Feb. 18. You can support the ALS research, education and clinical care described below by participating in our silent auction. …
February 2023 Foundation eNews
Foundation News Place your bids to help find a cure for ALS Let’s get ready to bid! Online bidding opens Feb. 15 for the Hope Through Caring Gala’s silent auction, with over 150 items including travel experience packages with resort …
Faces of ALS: Redefining advocacy for a new generation
Please join us at the Hope Through Caring Gala on Saturday, Feb. 18, where Brian and Sandra will be our guests of honor alongside fellow awardee First Bank Chicago and people living with ALS like Ken Avick. By attending the Hope Through Caring Gala, you …
January 2023 Foundation eNews
Foundation News Mature ‘lab grown’ neurons hold promise for ALS and other neurodegenerative diseases Researchers at the Les Turner ALS Center at Northwestern Medicine and Northwestern University have created the first highly mature neurons from human induced pluripotent stem cells (iPSCs), …
Faces of ALS: Hope Through Painting
Please join us at the Hope Through Caring Gala on Saturday, Feb. 18, where Ken and his wife Ann, award honorees Brian Wallach & Sandra Abrevaya and First Bank Chicago, and people living with ALS will be our guests of …
January 2023 Foundation eNews
Foundation News Thank you We can’t thank you enough for your generosity during our end of year fundraising campaign. Your donations are making a profound impact not only on the lives of those living with ALS and their families, but …
Faces of ALS: From caregiver to advocate
Tyler Gaetano’s mother Vera, a Navy veteran, worked in the research department at the VA Hospital in West Haven, CT. Because she had been experiencing slurring of her speech, she decided to seek medical advice. Due to her history of …
December 2022 Foundation eNews
Foundation News Now is the time When a family is dealing with an ALS diagnosis, children are often more aware of what is going on than parents may realize. They can sense when a family member is stressed, and many …