The Les Turner ALS Foundation participated with The National Organization for Rare Disorders (NORD) in a letter writing campaign to urge Congress to reconsider repealing the Orphan Drug Tax Credit proposed by Chairman Dave Camp (R-Michigan). Together over 130 patient organizations and professionals within the rare disease community signed on with NORD to send a letter to oppose this proposed repeal.
View the letter here and find out which other rare disease organizations support this cause.
