May 2024 Foundation eNews

Ashley RosenbrockFoundation eNews, Home Page

It’s ALS Awareness Month!

Creating a world free of ALS takes all of us. Throughout the month of May, we’ll spotlight people doing great work to raise funds and awareness, and we’ll share actionable ways you can make an impact in the fight against this disease.

Whether it’s something like sharing ALS fact on social media, volunteering at an event, registering an ALS Walk for Life team, or even holding a fundraiser, your involvement brings hope and support to those affected by ALS.

Consider committing to at least one action to show your support—every small gesture contributes to a larger change. Together, we can raise awareness and foster community support for this vital cause. Learn more about how you can get involved this month by clicking the link.

Pioneering Stem Cell Studies to Unravel the Complexities of ALS

To better understand the molecular mechanisms that underlie ALS, researchers at the Les Turner ALS Center at Northwestern Medicine are developing a new technological platform to study stem cells derived from people living with ALS.

Evangelos Kiskinis and his team have used this technology to study inherited forms of ALS, but since sporadic ALS likely occurs from a combination of gene mutations and environmental factors, it’s harder for scientists to understand just how the disease develops. To find out, Kiskinis is building innovative cellular models by “pooling” together stem cell lines derived from multiple ALS patients.

“The underlying question is, how different or similar are all these sporadic ALS patients?” Kiskinis said. “Our model allows us to ask whether the disease is driven by environmental factors or whether there is something about the genetic code of these people that makes them uniquely vulnerable to ALS.” Read the whole story.

Join us for a Lou Gehrig Day Celebrations with the Chicago White Sox and Chicago Cubs

Join us for a memorable day of baseball, solidarity, and fun at the annual Lou Gehrig Day celebration with the Chicago White Sox and Chicago Cubs! Come see the White Sox go head-to-head with the Baltimore Orioles May 26 at Guaranteed Rate Field; We’ll also be cheering on the Chicago Cubs against the Cincinnati Reds on June 2 at Wrigley Field. Celebrate the enduring legacy of Lou Gehrig together with us out at the ballpark.

Bring your friends and family out for both of these day games, kicking off at 1:15 PM with optional tailgating with light snacks and drinks ahead of the game. This year we’ll be collaborating with I AM ALS, ALS United, and the MDA (Muscular Dystrophy Association).

Developing Tools to Help People with ALS Make Difficult Decisions

Join us for another insightful session of our ALS Learning Series webinar on Thursday, May 30 at 6:00 PM CST, featuring Dr. Anne Hogden from the University of New South Wales, Australia.

Explore the collaborative dynamics behind decision-support tools as Dr. Hogden presents how these resources are developed in partnership with the ALS community. This includes patients, their families, and healthcare professionals, all working together to create tools that enable those affected by ALS and MND to make knowledgeable decisions regarding their care and quality of life.

Remember, our webinars are now happening via Zoom, available for download here.

We’re Fleet Feet’s Charity of Choice this May

This May, during ALS Awareness Month, we’re thrilled to be recognized as Fleet Feet’s charity of choice.

As you visit one of Fleet Feet’s 8 Chicagoland locations, you’ll discover opportunities to engage directly with our mission. Learn about and sign up for our outdoor events like the Lew Blond Run/Walk, Lifetime Half Marathon & 10K, and the Les Turner ALS Walk for Life. Additionally, explore how you can join our efforts more actively by signing up for volunteer opportunities.