Difficult Conversations Can Be Some of the Most Important
Making Your End-of-Life Wishes Known Author: Karen Raley Steffens, RN, CHPN, CCM ALS Support Services Coordinator “You may not control life’s circumstances but getting to be the author of your life means getting to control what you do with them.” …
How to Prepare for a Telehealth Visit
Due to the recent COVID-19 pandemic, many people, especially those living with ALS, have needed to change their routines in several ways including pivoting their medical appointments to telehealth visits. A recent article published in Brain & Life Magazine shared …
Introducing the Joan & Paul Rubschlager Professorship
When Paul Rubschlager’s father was diagnosed with ALS in 1974, little was known about the cause of ALS and even less existed to help families facing this heartbreaking disease. After Paul’s father passed away in 1975, he and his wife …
A Letter From Our CEO
Dear Friends, On Friday, due to the COVID-19 outbreak, the Governor of Illinois issued a statewide shelter-in-place order, similar to what we’ve seen in other parts of the country. This news creates challenges for all of us. How do we …
Telehealth – How We’re Adapting
The need to adapt to changing circumstances is not new to those with ALS. ALS requires constant attention and creativity to stay ahead of physical and emotional changes. As news continues to emerge about precautions against COVID-19, we are all …
Mechanisms Discovered Behind C9orf72 ALS Mutation
Evangelos Kiskinis, PhD, of our Les Turner ALS Center at Northwestern Medicine, alongside fellow Northwestern Medicine scientists, recently discovered the mechanisms and consequences behind ALS defect gene C9orf72. “A DNA mutation in a gene known as C9orf72 is responsible for …
Memories: 2019
Didn’t see your favorite moment? Head to our Flickr page to relive even more of 2019: https://www.flickr.com/photos/lesturnerals/albums
New Study Evaluates Impact of Traumatic Brain Injury on ALS
The mission of our Les Turner ALS Center at Northwestern Medicine is to strive for a future without ALS by accelerating leading-edge research while providing life-enhancing treatment to people living with ALS. Our team at the Center, made up of …
