As 2017 comes to a close, see what you accomplished: You supported research that led to Radicava, the first FDA approved drug in 22 years.You raised over $2 million at events that inspired the ALS community. You educated others and …
Meet the New Center Director: Q&A
Join us in welcoming Robert Kalb, MD, the inaugural Director of the Les Turner ALS Research and Patient Center at Northwestern Medicine and Chief of Neuromuscular Medicine in the Ken & Ruth Davee Department of Neurology. Dr. Kalb has spent …
C.H.A.R.M Through the Holidays
For most people, the holidays are a time of joy and good cheer. But when living with ALS, or providing care for someone who does, holiday activities have the potential to add stress to an otherwise happy season. Over the years, …
Cytokinetics Announces Negative Results from VITALITY-ALS
Cytokinetics announced the endpoints for the clinical trial of tirasemtiv (VITALITY-ALS) had not been met and that further development of the drug was being suspended. We share Cytokinetics, and your, disappointment in this announcement and are grateful for Cytokinetics continued …
2018 Chicago Marathon Refer a Friend Contest
Know someone who loves to run? You can win $200 for yourself and $100 for your friend by asking them to run with Team Race for ALS in the 2018 Bank of America Chicago Marathon! Take these easy steps to …
Run with Team Race for ALS: 2018 Chicago Marathon
Now is your chance to accomplish something HISTORIC for yourself and the entire ALS community: Run with Team Race for ALS in the 2018 Bank of America Chicago Marathon. Registration closes November 29. If you’ve ran the Chicago Marathon with …
7th Annual Les Turner Symposium on ALS and NeuroRepair
The 7th Annual Les Turner Symposium on ALS and NeuroRepair will held on Monday, November 6 at Prentice Women’s Hospital. Celebrating research, patient care and education–attendees will get the opportunity to learn the latest on ALS drug development. Christopher Henderson, …
Meet the Director of the Les Turner ALS Research and Patient Center at Northwestern Medicine
It is our great pleasure to announce that Robert Kalb, MD from the University of Pennsylvania has been selected as the first Director of the Les Turner ALS Research and Patient Center at Northwestern Medicine, Chief of Division of Neuromuscular …
Radicava is Now Available for Treatment in U.S
Mitsubishi Tanabe Pharma America, Inc., today announced RADICAVA ™ (edaravone), an intravenous therapy indicated for all adult patients diagnosed with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, is now available for treatment in the United States. RADICAVA, …
ALS Ice Bucket Challenge: Three Years Later
In 2014, the ALS Ice Bucket Challenge swept the globe, forever changing the face of ALS. Millions of dollars were raised and awareness reached an all time high. Three years later, major advances in ALS research and patient care have …
