Caring makes the difference. For Mario Hernandez, it starts with his daughters Jenny and Emily. “My daughters are two angels that God gave me, to support me in this moment of what I’m going through right now,” says Mario. …
5 Tips for Eating with ALS
It’s never too early to focus on your diet after an ALS diagnosis. It’s important to note that it takes more energy to move and breathe with ALS, so you’re burning more calories at rest than people who do not …
The Keldani Family Fights On
Susan Keldani won’t slow down. At the age of 60, she’s a prolific fundraiser for ALS care and research, the mother of college-age triplets, and the owner of a busy intermodal trucking company. Managing a business alongside the ever-present …
Relyvrio/AMX0035 Phase 3 Clinical Trial Results Announced
UPDATE: Amylyx Pharmaceuticals has announced that Relyvrio will be removed from the market, and that patients on the therapy as of April 4 in the U.S. and Canada who, in consultation with their physician, wish to continue can be transitioned …
ALS organizations come together to advocate for FY25 funding priorities to Congress
Delivered to the offices of Sen. Patty Murray and Sen. Susan Collins on the U.S. Senate Committee on Appropriations, and the offices of Rep. Kay Granger and Rep. Rosa DeLauro on the U.S. House Committee on Appropriations. March 5, 2024 …
Steve McMichael, ALS Champion, Elected to NFL Hall of Fame
UPDATE: In tribute to Steve McMichael, the Chicago Bears have pledged to make a $76,000 contribution to the Les Turner ALS Foundation. Through the end of February 2024, every donation made to Bears Care — the charitable arm of …
The things that matter the most
Brian Davis was diagnosed with ALS last year at the age of 35. This holiday season, Brian and his wife Katy McNeil want to share how the disease has affected them – and how much your support for the Les …
2023 Gift Guide for People Living With ALS
Haga clic aquí para leer este artículo en español. On Black Friday, Cyber Monday, or any day this holiday gift season, it’s never too early to start looking for the perfect present. If your holiday shopping list includes someone who …
Studies identify novel underpinnings of genetic ALS
A pair of recent studies from the laboratory of Evangelos Kiskinis, PhD, associate professor in the Ken and Ruth Davee Department of Neurology’s Division of Neuromuscular Disease and of Neuroscience and a member of the Les Turner ALS Center at Northwestern Medicine, have uncovered novel …
Letter to the Editor: Support veterans with ALS
This letter was published in the Chicago Tribune on Saturday, Nov. 11, 2023 For many people, baseball is the first thing that comes to mind when they think of amyotrophic lateral sclerosis, or ALS, thanks to New York Yankees player …
