Foundation News Giving back in gratitude For people who have lost a loved one to ALS, the holidays are a time of reflection and gratitude to those who cared for family and friends during their ALS journey. Victor was 14 …
Our Boughton Grant Program makes home modifications easier
As a licensed cosmetologist and hairdresser for 19 years, Janie Gobeli was concerned when she began to lose strength and dexterity in her right hand. Walking was already difficult for her, having recently broken her kneecap in a fall. Soon …
Faces of ALS: Giving thanks for those magical moments
Wendell Meyer enjoyed gardening, tackling household projects and being active in his church. By profession, he worked as a business analyst at the American Medical Association. When he began to rapidly lose weight, he decided to seek out answers with …
Year-End Giving: Hope and Help for People Living With ALS
Victor was 14 years old when his father, an avid marathon runner, was diagnosed with ALS. To this day, he remembers how much the support his family received from the Les Turner ALS Foundation meant to them. “Anyone who is …
November 2022 Foundation eNews
Foundation News Grants that make a difference The Les Turner ALS Foundation offers several grant programs to help provide financial assistance, independence and empowerment for people living with ALS. In 2022, we will have funded nearly 80 grants – made possible …
Faces of ALS: A true brotherhood
Jim Thew joined the Navy in 1991 and was stationed as an aircraft mechanic at the Naval Air Facility Atsugi in Ayase, Kanagawa, Japan, where he met his wife, Kumiko. In 1999, they moved to Illinois to take care of …
November 2022 Foundation eNews
Foundation News Join the ALS research conversation on Nov. 7! The Les Turner Symposium on ALS brings together leading ALS researchers, clinicians, and most importantly, people living with ALS and their families. Not only does the symposium provide the latest …
Faces of ALS: Raising his voice in advocacy for ALS
Rob Faulstich’s advocacy journey began when his sister-in-law, Diane Costello, was diagnosed with ALS in late 2018. “Prior to Diane’s diagnosis, she had difficulty walking and was tripping frequently going up stairs and curbs,” says Rob. “When she sought treatment …
FDA Awards 19 Grants and Two Contracts Related to Rare Diseases, including ALS
On Monday October 17, 2022, the U.S. Food and Drug Administration announced it has awarded 19 new grants and two new contracts totaling more than $38 million in funding over the next four years to support clinical trials, natural history …
October 2022 Foundation eNews
Foundation News Register for NINDS ALS Strategic Planning Workshop Tomorrow, the draft of the National Institute of Neurological Disorders and Stroke (NINDS) ALS Strategic Plan, is being made available to the public. The Les Turner ALS Foundation has been an …
