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Foundation News Join the ALS research conversation on Nov. 7! The Les Turner Symposium on ALS brings together leading ALS researchers, clinicians, and most importantly, people living with ALS and their families. Not only does the symposium provide the latest …
Rob Faulstich’s advocacy journey began when his sister-in-law, Diane Costello, was diagnosed with ALS in late 2018. “Prior to Diane’s diagnosis, she had difficulty walking and was tripping frequently going up stairs and curbs,” says Rob. “When she sought treatment …
On Monday October 17, 2022, the U.S. Food and Drug Administration announced it has awarded 19 new grants and two new contracts totaling more than $38 million in funding over the next four years to support clinical trials, natural history …
Foundation News Register for NINDS ALS Strategic Planning Workshop Tomorrow, the draft of the National Institute of Neurological Disorders and Stroke (NINDS) ALS Strategic Plan, is being made available to the public. The Les Turner ALS Foundation has been an …
Tony Caruso was a busy OB-GYN who delivered hundreds of babies each year. So, it was no surprise when he began to notice symptoms of what he assumed was carpal tunnel syndrome. “I had these symptoms on and off for …
Foundation News The 2022 ALS Walk for Life was a success because of you! The 21st annual ALS Walk for Life was a huge success. And we have the photos – and figures – to prove it. We loved seeing …
As a lifelong baseball fan, Vince Foglia knew about ALS after having heard Lou Gehrig’s famous speech announcing that he had the disease. “ALS had always grabbed my attention because it is a cruel disease for which there is no …
The FDA’s decision to approve Amylyx Pharmaceuticals’ therapeutic compound AMX0035 for treatment of ALS was fully justified by the data and the science. Clinicians, researchers, advocacy groups, and people living with ALS spoke in overwhelming numbers in favor of approval. …
As a healthcare worker, Tina cared for people diagnosed with ALS, including her mother. Prior to her mom’s passing in 2018, Tina started to experience symptoms that were eerily familiar. “Towards the end of my mother’s battle with ALS, I began …
New results published this week provide further evidence that tofersen, a drug in development by Biogen, may be effective in slowing the progression of SOD1-ALS. As reported in the New England Journal of Medicine, the Phase 3 clinical trial (VALOR) …
