November 2022 Foundation eNews

Ashley Rosenbrock Foundation eNews, Home Page, Uncategorized

Foundation News

Grants that make a difference 

The Les Turner ALS Foundation offers several grant programs to help provide financial assistance, independence and empowerment for people living with ALS. In 2022, we will have funded nearly 80 grants – made possible by our generous donors.

The Walter Boughton Foundation Support Services Grant Program offers financial assistance to people with ALS to help cover a portion of the cost of certain equipment and necessary home modifications not covered by insurance.

The Assistive Technology Grant offers accessible technology to help people living with ALS communicate, control their environment and meet their care needs.

The Dan Nelson Respite Grant Program offers financial reimbursement to people with ALS, who demonstrate financial need to help offset the cost of respite care. This grant offers needed relief to family caregivers who report high levels of physical and emotional stress.

The Stuart Rosen ALS Transportation Fund helps provide transportation to and from the Lois Insolia ALS Clinic.

 Les Turner Symposium on ALS captivated hundreds around the world 

The 12th annual Les Turner Symposium on ALS was a huge success! Nearly 300 people attended the event in person or online. Beginning with opening remarks by Frank Granata, who is living with ALS, the symposium gave insight into research being done by a variety of professionals in the field from Northwestern University and other major academic institutions. This event, offered by the Les Turner ALS Center at Northwestern Medicine, allowed everyone the opportunity to ask questions and exchange ideas about ALS research and clinical care.

“Symposiums like this unite us and show the world our determination to work together and end vicious diseases like ALS,” says Hande Ozdinler, PhD, who presented and helped organize the symposium.

If you were unable to attend, all the presentations will be available for viewing in the coming days and photos are now online.

We look forward to seeing you at next year’s symposium.

 My ALS Communication Passport to Quality Care

Cover of the Communication Passport

How easy is it to share your personal and medical information and preferences with people? The My ALS Communication Passport to Quality Care is a useful tool to make sure your loved ones, outside caregivers and anyone who is part of your medical or support team know what’s important to you in your day-to-day routine and how you wish to be cared for.

There may be several people who participate in your care or new ones introduced along the way, or your care may be transferred from one place to another. Re-communicating all this information can be time-consuming, not to mention exhausting. Having it all in one easily accessible place can save you time and energy.

The My ALS Communication Passport to Quality Care can be completed in a hard copy format or online by using our easy-to-use digital layout.

Donate today to support runners in 100-mile Turkey Trot for ALS

Do you want to really work off your Thanksgiving feast? How about a 100-mile race from the Bean in Chicago all the way to Milwaukee?

The tradition began 10 years ago when marathon runner Alfredo “Pedro” Perro and his friend Scott Kummer decided to run one more 100-mile race before the end of the year. They nicknamed it the “World’s Longest Turkey Trot.”

Shortly after running the race, Alfredo was diagnosed with ALS. He passed away in November 2015 and, to honor his memory, Scott and other runners from the area have carried on the tradition every year, while also raising money and awareness for the Les Turner ALS Foundation and ALS. Last year, participants were able to raise over $13,000.

You can help support the fight against ALS by donating to this amazing team!