June 2024 Foundation eNews

Ashley RosenbrockFoundation eNews, Home Page

Experience the Power of Community

Rhona Bresler will always remember the experience. While the Les Turner ALS Walk for Life raises vital funds for ALS research, care, and support, it also holds profound personal significance for participants like Rhona, who leads the team Always Love Shelly in memory of her late husband.

“The first year that we walked, when Shelly came out, all our friends came out with their kids and showered him with love,” says Rhona. “That was a special day.”

Rhona’s husband was diagnosed with ALS in 2007. Since then, she has been a steadfast participant. She treasures the Walk as a time of solidarity and remembrance, celebrating the support that the Les Turner ALS Foundation provided during her most challenging times.

Join Rhona and the ALS community on Saturday, Sept. 14 at Soldier Field in Chicago to walk for someone you love. By registering, you can launch a fundraiser with just a couple of clicks, start or join a team, and contribute to the ongoing fight against ALS.

New ALS Research Grants for 2024

We’re proud to announce a major funding milestone for 2024, providing over $1 million in research grants and clinic and endowment support at the Les Turner ALS Center at Northwestern Medicine.

Led by Dr. Robert G. Kalb, the Center is advancing groundbreaking ALS research, attracting renowned experts new to ALS studies, and continuing promising investigations. These efforts include exploring the immune system’s role in ALS, innovative stem cell research, and developing new therapeutic approaches.

Dive deeper into how these initiatives are transforming the fight against ALS and meet the trailblazers behind this vital work. 

Unlock Your Genetic Counseling and Testing Options with Our Latest Tool

Dive into the latest My ALS Decision Tool™ module on Genetic Counseling and Testing for Family Members.

Our latest resource is designed to help family members of those with ALS and other related conditions understand their genetic counseling and testing options and the implications for their health management.

My ALS Decision Tool™ was made possible by generous donations from the Gilbert & Jacqueline Fern Foundation, Biogen, Cytokinetics Communications Fellowship Grant, Novartis, Novartis Gene Therapies, the Richard A. Perritt Charitable Foundation and other donors to the Les Turner ALS Foundation.

Empower yourself with knowledge on genetic testing and testing—explore our new module.

Rev Your Engines with Us and Gordon Scully at our NASCAR Watch Party

Join us on Saturday, July 6, from 4:00 – 7:00 p.m. at Mother Hubbard’s Sports Pub for a NASCAR in Chicago Watch Party. This exciting event is hosted by Gordon Scully, an IMSA Michelin Pilot Challenge GT4 driver, in partnership with the Les Turner ALS Foundation’s Young ProfessionALS Group. It’s set to be an exhilarating evening filled with motorsport entertainment.

Experience expert commentary from Gordon while enjoying an open bar (beer, wine, and well drinks) and a tasty buffet. All proceeds from the event will benefit the Les Turner ALS Foundation, supporting our mission to improve the lives of those affected by ALS. Don’t miss this chance to join the fun and contribute to a great cause. Secure your tickets now.

Lou Gehrig Day was a Smash Hit!

This year, our community came together in impressive numbers to celebrate Lou Gehrig Day at both Cubs and White Sox games. We were thrilled to welcome more than 230 fans for the White Sox game on Sunday, May 26 and the Cubs game on Sunday, June 2. It was also great to bring together several ALS organizations to share the experience.

Thank you to everyone who joined us at the ballpark for these special events. If we caught a snapshot of you enjoying the game, be sure to check out our Flickr account to find your photo!