November is National Family Caregivers Month
This month, take a moment to honor the dedication and resilience of caregivers who provide vital support for their loved ones living with ALS. At the Les Turner ALS Foundation, we recognize the unique challenges caregivers face and are here to help every step of the way.
We offer a variety of resources designed specifically for caregivers, including guides to navigate the ALS journey, the Dan Nelson Respite Grant Program to provide much-needed rest, and helpful tip articles aimed at empowering those new to caregiving. Additionally, our caregiver support groups create a safe space for connection and encouragement.
This month, we celebrate and support caregivers for the essential role they play. Explore our resources and let us help you on your journey.
The 2024 Les Turner ALS Symposium brought together leading experts, care providers, and the ALS community to explore advancements in ALS research and care. Whether you joined us in-person or virtually, thank you for making this event such a meaningful experience.
We’re excited to share that a video of the full symposium is now available on our website!
Revisit presentations from renowned speakers like Dr. Angela Genge, who discussed clinical trial innovations, and Dr. Robert Kalb, who shared updates from the Les Turner ALS Center. Learn about Dr. Pietro Fratta’s insights on RNA biology or Dr. Hande Özdinler’s work on upper motor neuron health. Don’t miss the chance to explore these impactful talks and share them with others who might benefit.
“Dr. Genge broke down very complex details about ALS and the many clinical studies and trials,” said Les Turner ALS Foundation CEO, Laura Freveletti. “She drove home the point that every piece of data collected, every study, is another stop closer to uncovering more therapies that will help make ALS a treatable disease.”
The clinical conversations panel was another highpoint of the day. “We learned about biomarkers, the power of early diagnosis, personal experiences with clinical research and the exciting progress we can expect in 2025, said Lauren Webb, Les Turner ALS Foundation Chief Advocacy and Outreach Officer.
Watch the video recordings of the symposium by clicking this link.
Looking for thoughtful gift ideas this holiday season? Our 2024 Gift Guide for People Living with ALS is here to help! Carefully curated with input from the ALS community, the guide features practical and meaningful suggestions designed to bring comfort, joy, and connection.
From adaptive equipment like hands-free devices and voice amplifiers to cozy items such as heated blankets and ergonomic pillows, there’s something for everyone. You’ll also find ideas for meaningful experiences, like a special meal delivery service or a memory-making day with loved ones.
We invite you to our December ALS Learning Series featuring Dr. Suzana K.E. Makowski, medical director of Compassionate Care ALS. Dr. Makowski will explore finding light in the darkness and gratitude as we approach a new season and year.
This free webinar is designed to support and inspire the ALS community, offering a unique perspective on the emotional and spiritual journey of living with ALS.
The Les Turner ALS Foundation thanks the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for their generous sponsorship. Secure your spot now by registering at the link below:
Guide Spotlight: ALS + Caregiver Self-Care
This National Family Caregivers Month, we’re highlighting the Caregiver Self-Care Guide, a vital resource designed to support those caring for loved ones with ALS. Available in both English and Spanish, the guide provides actionable strategies to help caregivers prioritize their own well-being.
Inside, you’ll find tips on preventing and managing burnout, such as maintaining a balanced diet, staying active, and finding time to rest. The guide also emphasizes the importance of connection through support groups and mind-body practices like meditation and journaling.
Caregiving can be challenging, but you don’t have to navigate it alone. This guide offers practical advice and resources to help you care for yourself while caring for others.
