MMWR in Brief

The Center for Disease Control and Prevention’s MMWR in Brief summarizes key points from “Prevalence of Amyotrophic Lateral Sclerosis – United States, 2010-2011.” New information in this report includes the first prevalence estimate and description of demographic characteristics of ALS …

Registry Adds Two New Surveys

The Agency for Toxic Substances and Disease Registry (ATSDR) added two additional risk factor surveys to the National ALS Registry. The new surveys ask about head trauma and health insurance coverage. There are now a total of 17 surveys designed …

EMBO Journal – April 29, 2015

Last month the lab published a review on the potential of using stem cells to probe disorders of the central nervous system at the EMBO Journal. You can read the full manuscript here (http://emboj.embopress.org/content/34/11/1456.long) Evangelos and lab members also attended …

Steve Gleason Act

The Steve Gleason Act was signed by President Obama on April 22, 2015 and will preserve access to speech generating devices (SGDs) and eye tracking technology for people with ALS. The bill will also allow people with ALS to keep …

Congress Acts on MODDERN Cures and Therapy Caps

Congress took action on two important ALS priorities enacting provisions of the MODDERN Cures Act and extending the exceptions process that enables people with ALS to continue to access needed therapy services. While this is an important victory, much more …