Les Turner ALS Foundation Takes Action

The Les Turner ALS Foundation participated with The National Organization for Rare Disorders (NORD) in a letter writing campaign to urge Congress to reconsider repealing the Orphan Drug Tax Credit proposed by Chairman Dave Camp (R-Michigan). Together over 130 patient organizations and professionals …

FDA Conducts first-ever public hearing related to ALS

In February 2013, the U.S. Food and Drug Administration (FDA) conducted its first-ever public hearing specific to ALS. Patients, caregivers, physicians and researchers addressed a panel of representatives from the FDA. The ALS Association and MDA partnered together to represent the ALS …

Agency for Toxic Substances and Disease

ATSDR’s mission is to serve the public through responsive public health actions to promote healthy and safe environments and prevent harmful exposures. In 2008, Congress enacted the ALS Registry Act to gather and organize information about who gets ALS and …