Leo’s Motor Neurons, Motoring at the Walk This September marks Sue Carrel’s 10th ALS Walk for Life—nine of them as the proud captain of Leo’s Motor Neurons, the team she formed with her husband Leo, who lived with ALS until …
Walker Wednesday #2
From Idea to Impact Fundraisers are a great opportunity to use your skills and your friends’ and family’s interests to achieve your fundraising goal. Our friends at the Matt Creen Golf Invitational have been raising money for the Les Turner …
August 2025 Foundation eNews
Walking for my dad, and the ALS community This September, Alex Willard will walk for the first time in honor of his dad, Jim, who was diagnosed with ALS in 2023. “Our story isn’t a sad one,” Alex says. “It’s …
August 2025 Foundation eNews
No Quitters for Q: walking strong for 16 years Since 2009, Ninfa Queyquep has led her team, No Quitters for Q, at the ALS Walk for Life in honor of her late husband, Eric. “He was diagnosed in July, and …
Walker Wednesday #1
Building Your Dream Team With only two months until the ALS Walk for Life on Saturday, September 20th, now is the time to build your team! Growing your team means you will raise more necessary funds for ALS care, education, …
July 2025 Foundation eNews
Two decades of walking strong — Gary Kravitz and his crew Since 2004, Gary Kravitz has been a constant presence at the ALS Walk for Life. “I’ve signed up 20 years in a row,” he says. “I only missed once—when …
LETTER: Advocating for the Renewal of ALLFTD Study to Propel ALS and FTD Research
The Honorable Richard Hodes, MD, Director of the National Institute on Aging The Honorable Walter Koroshetz, MD, Director of the National Institute of Neurological Disorders and StrokeNational Institutes of Health 9000 Rockville Pike, Bethesda, Maryland 20892 Subject: ALLFTD Renewal Dear Dr. …
Statement: “The One Big Beautiful Bill” Puts ALS Families at Risk
On July 4, 2025, “The One Big Beautiful Bill” was signed into law. It includes deep cuts to healthcare programs that people living with ALS and their caregivers rely on: Medicaid, Medicare, and the Affordable Care Act (ACA). These cuts, …
July 2025 Foundation eNews
Walking for Richie—and for each other For more than a decade, the D’Ambrosia family has come together for the ALS Walk for Life, honoring the man who brought them to the cause. Diagnosed in 2013 and living in Bronzeville near …
June 2025 Foundation eNews
Get ready for the biggest ALS event in the Midwest “This is a great event, there’s a DJ and things for kids to do. The location is great and helps bring out a crowd. I love the walk and the …
