November 3, 2026
ALS Organizations Celebrate the Signing of the ACT for ALS Reauthorization into Law
The undersigned organizations join together to celebrate the enactment of the ACT for ALS Reauthorization Act of 2026. This major victory protects the progress made possible by ACT for ALS and ensures its critical programs can continue.
The reauthorization extends ACT for ALS programs through fiscal year 2031, allowing continued expanded access to investigational treatments for people who cannot participate in clinical trials and research for ALS and other rare neurodegenerative diseases.
First and foremost, we recognize the power and resilience of the ALS community. People living with ALS, families, caregivers, and advocates drove this effort forward through sustained engagement, sharing their experiences, connecting with policymakers, and reinforcing the urgency of action.
We extend our sincere gratitude to our champions in Congress and congressional staff whose continued efforts moved this legislation forward, and to President Trump for signing it into law. This victory demonstrates what grassroots advocacy can accomplish.
ALS Hope Foundation
ALS Network
ALS One
ALS United
Answer ALS
Everything ALS
Her ALS Story
Hop On A Cure Foundation
I AM ALS
Les Turner ALS Foundation
Live Like Lou Foundation
Muscular Dystrophy Association
Target ALS
Team Gleason
