Hope and help for people with ALS.
Senate Majority Leader John Thune 511 Dirksen Senate Office Building 100 Constitution Ave, NE Washington, DC, 20510 Senate Minority Leader Chuck Schumer 322 Hart Senate Office Building 120 Constitution Ave, NE Washington, DC, 20510 Speaker of the House Mike …
When Kayleigh Massengill lines up for the Chicago Marathon this October, she’ll be running for more than a finish line. She’ll be running for her dad, Scott — and for every family facing ALS. Kayleigh, who lives in Manhattan’s Kips …
From a team of three to a growing force: Special Agent Marshman returns When Cliff Marshman was diagnosed with ALS in September 2024, the very next day was the ALS Walk for Life. His wife knew she had to do …
Terri Tatroe doesn’t waste time on despair. At 65, the Coal City mother of three and grandmother of five has already checked off her number-one bucket list item — a trip to Bali, Indonesia, to see her youngest son and …
Getting the gang back together: Rob Akins and the joy of Rob’s Mob For more than 20 years, Rob Akins has lived with ALS — and for the past three, he’s walked with Rob’s Mob, the team that bears his …
Researchers have long suspected the immune system to be a key player in the connective breakdown between the brain and the muscles in people with ALS. At the Les Turner ALS Center at Northwestern Medicine, neuroimmunologist and assistant professor David …
Family, faith, and a reason to walk together For Michael Jaquez and his family, the ALS Walk for Life is about one thing: seeing his mom, Luz, smile. Diagnosed with ALS in early 2025, Luz faced the first months with …
Kevin Dispensa never planned to run a marathon. But when his best friend from high school, Ross, suggested they tackle the Chicago Marathon in honor of Kevin’s mom, Janie Gobeli, everything clicked. Now, Kevin, his brother, his dad, and three …
July 13, 2026 Russell Vought, Director Office of Management and Budget Executive Office of the President 725 17th Street NW Washington, DC 20503 Re: Neuromuscular Disease Patient Advocacy Organization Comments on the “Regulation for Federal Financial Assistance” Proposed Rule – …
Kravitz Krew is going 22-years strong at the ALS Walk for Life For Gary Kravitz, the ALS Walk for Life is a tradition over two decades in the making. Since his first Walk at Montrose Harbor in 2004, Gary and …
