Hope and help for people with ALS.
Applying for Social Security Disability Insurance (SSDI) can feel overwhelming. It’s important to know that the ALS Disability Insurance Access Act of 2019 eliminates the required five-month SSDI waiting period for ALS applicants. You can apply for SSDI benefits here. Bear …
The Gala was a smash hit! With over 400 guests joining in person and virtually, the 37th annual Hope Through Caring Gala was a night to remember. Together, we raised $620,000 and counting to support compassionate ALS care, groundbreaking research, …
Experimental drug NU-9 — a small molecule compound approved by the U.S. Food and Drug Administration (FDA) for clinical trials for the treatment of amyotrophic lateral sclerosis (ALS) — improves neuron health in animal models of Alzheimer’s disease, according to …
The Hope Through Caring Gala auction is live! Our Hope Through Caring Gala is this Saturday, April 5 at the Radisson Blu Aqua Hotel in Chicago, but our fabulous Gala auction is now open for early bidding. Place your bids today …
For Satrina Bryant-Higgins, family is everything. Her three children and three grandchildren are the center of her world. “We are all we have, and we have a great relationship,” she says. “Whenever I see my grandbabies, it brightens my whole …
We are grateful to share that ALS has been recommended by House and Senate Defense Appropriations leadership for $40 Million for Fiscal Year 2025 through the Congressionally Directed Medical Research Programs at the Department of Defense. U.S. military veterans are …
Building community, creating impact At this year’s Hope Through Caring Gala, we recognize Brian Davis and Katy McNeil, whose generosity and dedication have strengthened the ALS community in lasting ways. When Brian was diagnosed with ALS on his 36th birthday …
Delivered to the offices of Sen. Susan Collins and Sen. Patty Murray on the U.S. Senate Committee on Appropriations, and the offices of Rep. Tom Cole and Rep. Rosa DeLauro on the U.S. House Committee on Appropriations. March 18, 2025 …
Updated: On March 14, 2025, the Senate passed a bill that will fund the government through Sept. 30, 2025. We will continue to provide updates as we learn more about how these budget cuts will affect ALS research. This is …
For Ken Trent and his family, those six words—never back down, never give up—have become their motto. His youngest daughter first said them, and now they guide the Trent family through each day. “ALS takes away your independence,” says Ken. …
