August 2020 Foundation eNews

New and Improved Clinical Trials Webpage While it may feel like much in life is on pause at the moment, there is exciting news in the ALS clinical trials and studies space, including information on the upcoming HEALEY ALS Platform …

Virtual ALS Celebration of Life 2020

This past weekend, over 100 members of our Les Turner ALS family joined us for our Virtual Celebration of Life. The event consisted of a moving 15-minute ceremony honoring those we have lost to ALS. The ceremony included readings from …

July 2020 Events eNews

Remembering Those We’ve Lost In remembrance of our loved ones lost to ALS, we’re hosting a Celebration of Life on Saturday, July 18 at 11am via Facebook Live. This will be a moving, 15-minute online service honoring those we have …

July 2020 Foundation eNews

HEALEY ALS Platform Clinical Trial Update Our Les Turner ALS Center at Northwestern Medicine is a participating site for the first-ever ALS platform trial. The clinical drug trial, led by the Sean M. Healey & AMG Center at Massachusetts General …

Advocacy Announcement – June 26, 2020

The Les Turner ALS Foundation has joined with the ALS community in support of two pieces of legislation – the Promising Pathway Act (S. 3872) and the Accelerating Access to Critical Therapies for ALS Act (H. 7071), which is co-sponsored …

Letting the Love In

The first night they met, John and Meg Rooney won second place in a dance contest. What followed was a 27-year marriage, three sons and a long-term dedication to our Les Turner ALS family. For many of you, the Rooney …

June 2020 Events eNews

Upholding Family Values and Traditions For Rosa Elizondo and her teammates, participating in our Strike Out ALS 5k and 1 Mile Run, Walk & Roll allows them to race towards a cure in loving memory of Rosa’s uncle, Alfonso, who …

June 2020 Foundation eNews

Upper Motor Neuron Degeneration Pinpointed  In a recent study published in Frontiers in Molecular Neuroscience, researchers at our Les Turner ALS Center at Northwestern Medicine and the University of Belgrade have discovered the electrophysiological mechanism behind upper motor neuron disease, which …