April 2020 Events eNews

Tag for ALS From Home As you can see from our video, we’re doing Tag Days a bit differently this year. Since 1997, our Tag Days Drives have raised over $2 million to support people living with ALS and helped …

April 2020 Foundation eNews

Our Mission Continues So much has changed since our last Foundation eNews. We’ve all been asked to acclimate to a new normal. But one thing that hasn’t changed is our dedication to our Les Turner ALS family. Our ALS Support …

A Letter From Our CEO

Dear Friends, On Friday, due to the COVID-19 outbreak, the Governor of Illinois issued a statewide shelter-in-place order, similar to what we’ve seen in other parts of the country. This news creates challenges for all of us. How do we …

Telehealth – How We’re Adapting

The need to adapt to changing circumstances is not new to those with ALS. ALS requires constant attention and creativity to stay ahead of physical and emotional changes. As news continues to emerge about precautions against COVID-19, we are all …

March 2020 Events eNews

A Record-Breaking Hope Through Caring Gala We broke the record at our Hope Through Caring Gala by raising over $900,000 to support our Chicagoland ALS community and advance scientific research. We are so grateful to Ed Rapp, recipient of the …

March 2020 Foundation eNews

We Are the Les Turner ALS Foundation Last week at our record-breaking Hope Through Caring Gala we premiered our brand new Les Turner ALS Foundation video! Our vision for our latest video was simple – our Les Turner ALS family …

Mechanisms Discovered Behind C9orf72 ALS Mutation

Evangelos Kiskinis, PhD, of our Les Turner ALS Center at Northwestern Medicine, alongside fellow Northwestern Medicine scientists, recently discovered the mechanisms and consequences behind ALS defect gene C9orf72. “A DNA mutation in a gene known as C9orf72 is responsible for …