August 2020 Foundation eNews

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New and Improved Clinical Trials Webpage

While it may feel like much in life is on pause at the moment, there is exciting news in the ALS clinical trials and studies space, including information on the upcoming HEALEY ALS Platform Trial.

We recently updated the Clinical Trials & Studies page on our website. By listing currently enrolling trials and studies as well as updates on completed projects, our goal is to keep you well informed about the trials and studies offered at our Les Turner ALS Center at Northwestern Medicine. Check out our new Clinical Trials & Studies webpage>>

 

Clinical Education and ALS Management

The Les Turner ALS Center at Northwestern Medicine team recently published a manuscript on the multidisciplinary care of patients living with ALS.

Among the many findings was that early initiation of noninvasive ventilation improves quality of life and prolongs survival, and early implementation of airway clearance techniques in patients with bulbar ALS may improve noninvasive ventilation compliance and prevent respiratory infections.

“Our team works very hard to support ALS patients and their families using a collaborative and multidisciplinary approach,” said Jonathan Brent, MD, co-author of the paper and member of the Center’s Lois Insolia ALS Clinic. “This review highlights key management problems we tackle daily in the clinic by incorporating evidence-based treatments with our center’s practical experience.”
Read the full paper here>>

 

Meeting the Challenge of ALS During COVID-19

Our ALS community has shown us time and again how to adapt to a changing environment. What hasn’t changed is our shared dedication to providing comprehensive care, a community of local support and hope through scientific research.

In our latest print newsletter edition, we demonstrate just how we’re all rising to meet the challenge of ALS during the time of COVID-19, through virtual support services, support groups, events and more! Read our 2020 Summer Print Newsletter here>>