Michelle has been a lifelong Chicago White Sox fan. But when she went to a Sox game in June, she saw something that left her in disbelief. Prior to her ALS diagnosis, Michelle and her longtime partner Sue led an …
May 2021 Foundation eNews
How Do You #TakeABreath? Breathing. It’s something that can easily be taken for granted. But for many people living with ALS, breathing can often be a daily challenge. Our #TakeABreath campaign during ALS Awareness Month in May allows you to share …
Working to Make True on a Wish
When Jonathan Brent, MD, PhD, asks his ALS patients what their goals are, the answer is almost always the same: to find a cure for ALS. “What motivates me,” says Dr. Brent, “is how I can make true on that …
Passion, Unabated
For Diane Pospeshil and her family, music and the arts are a lifeline and part of their collective DNA. Beginning with a small dance studio they ran from the basement of their home in Buffalo Grove, Illinois, the family business …
Statement from Novartis Gene Therapies: OAV301 program for familial ALS caused by SOD1 mutation
Please see summary below from Novartis Gene Therapies on the OAV301 program for familial ALS caused by the SOD1 mutation: Novartis Gene Therapies (formerly AveXis) deeply appreciates the collaboration and support of the amyotrophic lateral sclerosis (ALS) community. Our ALS …
August 2020 Foundation eNews
New and Improved Clinical Trials Webpage While it may feel like much in life is on pause at the moment, there is exciting news in the ALS clinical trials and studies space, including information on the upcoming HEALEY ALS Platform …
