May 2021 Foundation eNews

lesturnerAdvocacy, Foundation eNews, Home Page

How Do You #TakeABreath?

Breathing. It’s something that can easily be taken for granted. But for many people living with ALS, breathing can often be a daily challenge.

Our #TakeABreath campaign during ALS Awareness Month in May allows you to share how you “take a breath,” to recognize and honor the resiliency of people living with ALS.

Whether you bike, draw, meditate, read or more, turn your hobby and passion into an ALS Awareness Month fundraiser in support of those for whom breathing is a challenge. #TakeABreath with us in honor of ALS Awareness Month>>


May ALS Learning Series: #TakeABreath, Respiratory Support in ALS

In our ALS Learning Series webinar on Thursday, May 20 at 12pm CDT, our own John M. Coleman III, MD, Associate Professor, Division of Pulmonary & Critical Care Medicine and Department of Neurology at Northwestern Medicine, and pulmonologist in our ALS Clinic, will explain the latest respiratory therapies in ALS.

As a part of our #TakeABreath ALS Awareness Month programming, Dr. Coleman will discuss respiratory management in ALS, emphasizing clinical symptoms, diagnostic testing and therapeutic interventions. Register for the May ALS Learning Series webinar>>


We Remember Them

So long as we live, they too shall live, for they are now part of us, as we remember them.

On Saturday, June 12, we will honor those we have lost to ALS at our Celebration of Life.

Please submit your loved ones’ name and photo by May 28 to be included in memoriam during the video montage. The annual service, which will take place virtually through Facebook Live, will be led by our Support Group Facilitator Anne Lidsky, PhD, with music from Cantor Adam Kahan. Submit the name/photo of your loved one for the Celebration of Life>>