Hello, walkers! Welcome to Walker Wednesday where we share inspiring stories and tips on how to run a successful fundraiser and keep you up to date on Walk news. Walker Spotlight: Ninfa Queyquep Ninfa is the captain of one of …
Faces of ALS: Anne Lidsky, a legacy of resilience and love
More than 50 years later, Anne Lidsky vividly remembers preparing mixed chicken broth and other homemade concoctions for her mother’s feeding tube. She was a teenager when her mother was diagnosed with ALS, and with her father also unwell, Anne …
Faces of ALS: Julie Stowell, from the heart
She’s one of the people you see at the finish line of the ALS Walk for Life, wearing a sparkly silver-and-blue tutu as she cheers on the finishers. But watch Julie Stowell for a minute and you’ll see her slip …
The Importance of Comprehensive Care for ALS
In 2016, at the age of 38, Kristin Rankin was in the prime of her career and personal life. Married with three young daughters, Kristin was three years into pursuing tenure as an assistant professor of Maternal and Child Health …
Nearly $1 Million in ALS Grants Awarded for 2023
In 2023, the Les Turner ALS Foundation is funding nearly $1 million in ALS research grants and clinic and endowment support at the Les Turner ALS Center at Northwestern Medicine. This is the second year in a row that funding …
Lois Insolia ALS Clinic Opens Enrollment for New HEALEY ALS Platform Trial Regimen
The Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine is now an active site for Regimen F of the HEALEY ALS Platform Trial. The focus of Regimen F is ABBV-CLS-7262, an investigational product being developed …
Announcing the ALS Newly Diagnosed Support Series
An ALS diagnosis is difficult to process. People often feel shocked and isolated by the news, whether the diagnosis was for themselves or a family member. It’s hard to move forward or figure out what comes next. “For many people, …
Illinois proclaims ALS Awareness Month, recognizes Les Turner ALS Foundation
Gov. J.B. Pritzker has proclaimed May as ALS Awareness Month in the State of Illinois, recognizing the care and support that the Les Turner ALS Foundation provides for people living with ALS and their families. The full proclamation can be …
Introducing My ALS Decision Tool™ on Genetic Testing for People Living with ALS
Launching today, the new My ALS Decision Tool™ on Genetic Testing is the first tool of its kind in the U.S. that focuses on genetic testing for anyone with ALS. It is designed to help people learn more about treatment options, …
FDA Approves tofersen (Qalsody™) for Treatment of SOD1-ALS
We are pleased that the FDA has granted accelerated approval to tofersen for treatment of SOD1-ALS. As the first FDA-approved treatment to target a genetic cause of ALS, this is a landmark moment for the ALS community. We are grateful …
