Join us for “The Impossible Dream”
We are thrilled to welcome Aaron Lazar to the Hope Through Caring Gala on Saturday, April 5. An award-winning Broadway star, television and film actor, and recording artist, Aaron is bringing his musical journey, “The Impossible Dream”, to the Gala. It’s an exploration of healing and transformation drawn from his personal experience as someone who is living with ALS.
Since his ALS diagnosis in 2022, Aaron has embraced each day with a new perspective. “It’s not a fight,” he says. “I don’t want to meet this with any kind of resistance. I want to meet it with ease and joy and healing.”
His story is one of profound change, resilience, and gratitude. “For whatever life I’ve got left, I don’t want to be afraid,” he says.
URGENT: Tell Congress to Oppose Catastrophic Research Cuts
The National Institutes of Health (NIH) has announced major funding cuts that could have a devastating impact on ALS research. These reductions would halt groundbreaking discoveries, shut down clinical trials, and force research teams to disband—jeopardizing the progress we’ve made toward effective treatments.
For decades, NIH funding has driven critical advancements in neuromuscular diseases, including gene therapy breakthroughs and new treatments. Cutting support now would bring this momentum to a halt, just as we stand on the verge of major breakthroughs for ALS and other neuromuscular diseases.
The Les Turner ALS Foundation is fighting back, but we need your help. Contact your members of Congress today and urge them to oppose these catastrophic cuts. Your voice can make a difference.
Click the button below to take action now. Tell Congress to protect ALS research.
This month, we joined more than 50 advocates in Washington, DC for the “More Than Our Stories” conference to push for stronger investment in ALS research, improved care, and better support for people living with ALS and their caregivers. Securing continued funding for ALS research remains our top priority. While progress has been made, finding safe and effective treatments requires ongoing investment and immediate release of funds to researchers.
We met with congressional leaders, including Sen. Lisa Murkowski and assistants to Rep. Mike Quigley’s office, to discuss critical issues such as veterans’ support, Medicaid access, and caregiver resources. The passion and dedication of the ALS community continue to drive change, but we need your voice.
Because of you, people affected by ALS received the care and support they needed, and groundbreaking research moved forward. Your donations, advocacy, and participation made an incredible difference.
This past year, the Les Turner ALS Foundation funded more than $1 million in ALS research grants, supporting innovative projects at the Les Turner ALS Center at Northwestern Medicine. We helped advance clinical trials and studies exploring metabolism, stem cells, and the progression of ALS.
Our support services team provided more than 5,100 care coordination meetings, a 20 percent increase from last year. We awarded $137,000 in grants to help families with home modifications, respite care, and transportation.
Read the whole impact report by clicking the link.
Join us for our March ALS Learning Series
Join us for an insightful webinar with Dr. James D. Berry, Chief of the MGH Division of ALS and Motor Neuron Diseases, as he explores how observational studies accelerate drug development and create lasting resources for the ALS community. Dr. Berry will discuss the design and impact of these studies, highlighting their role in identifying biomarkers, improving clinical trial methodology, and shaping future ALS research.
This webinar is offered at no cost thanks to the Gilbert & Jacqueline Fern Foundation, Biogen, and Mitsubishi Tanabe Pharma America.
Don’t miss this opportunity to learn from a leading ALS expert. Register now to secure your spot.
