January 2024 Foundation eNews

Ashley RosenbrockFoundation eNews, Home Page

For all your support, we thank you

As the new year begins, we at the Les Turner ALS Foundation are filled with immense gratitude. Thanks to your incredible support during our end-of-year campaign, we can provide essential resources, care, and hope to people and families living with ALS.

It’s inspiring to see our community come together in pursuit of our shared mission. Here’s to continuing this journey together and making every moment count for those affected by ALS.

ALS Learning Series: Could the ALS in My Family Be Genetic?

Join us on Wednesday, Jan. 31 at 12:00 pm CST for our next installment of the ALS Learning Series webinar. Navigating ALS care involves complex decisions, and this month we’re focusing on the critical topic of genetic testing.

We’re excited to have Laynie Dratch, ScM, CGC, discuss the role of a genetic counselor, answer common questions about the genetics of ALS-FTD spectrum disorders, explain the genetic testing process, and address any questions you may have. This is a unique opportunity to engage with an expert and can’t miss webinar.

Laynie encourages attendees to bring their questions for an interactive and informative discussion. Register now to be a part of this vital conversation!

Our ALS & Intimacy Guide, Now in Spanish / Nuestra Guía de ELA e Intimidad, Ahora en Español

Becoming a caregiver is a significant change, and your relationship with your loved one is bound to change. Our ALS & Relationships, Sex and Intimacy guide is a crucial resource for support and information for those facing the unique challenges of caregiving for someone with ALS.

We’re also proud to present this guide in Spanish

Introduciendo nuestra guía de ELA y Relaciones, Sexo e Intimidad. Esta guía es una fuente vital de información y apoyo para quienes se enfrentan a los desafíos únicos de ser cuidadores de personas con ELA. Sabemos que asumir el papel de cuidador es un cambio significativo, y las relaciones con sus seres queridos inevitablemente se transforman.

Apply for Grant and Assistance Programs

We’re committed to supporting people and families living with ALS through our grant programs & equipment loans. These programs offer financial assistance, helping cover the costs of vital equipment, home modifications, respite care, and more, which are often not covered by insurance.

Are You Part of the ALS Registry?

The National Amyotrophic Lateral Sclerosis (ALS) Registry allows people with ALS to get involved in research and help future generations. Research today may lead to a better understanding and potential treatments tomorrow. By signing up for the National ALS Registry, being counted, and taking risk factor surveys, people living with ALS can help find answers.