Executive Director, Andrea Pauls Backman joined Kevin on 670 The Score during the segment Score Values to discuss the Les Turner ALS Foundation’s upcoming events. Listen to the entire interview to learn more about the Foundation and events to get …
Legislation Introduced to Waive Five Month SSDI Waiting Period For People Living With ALS
Take Action to urge your Members of Congress to co-sponsor the “ALS Disability Insurance Access Act” and support people living with ALS by getting them the benefits they need faster. The Act, which was introduced by Senators Sheldon Whitehouse (D-RI) and …
Adjacent Government: Helping ALS patients is not only a medical need, but also a moral obligation
An article by Dr. Hande Ozdinler was published in Adjacent Government which provides a unique look at the complexities of ALS as well as the limitations researchers face as they search for a cure. Having funds for research is crucial …
Access To Complex Rehab Technology is Threatened for People with Disabilities
The Illinois Medicaid program recently announced significant payment changes to Complex Rehab Technology(CRT). The cost of supplying this specialized equipment will no longer be covered and as a result, CRT companies have been forced to suspend services for Medicaid beneficiaries …
Pesticide Exposure Found in Early Study to Possibly Trigger ALS
According to ALS News Today, a study published online in JAMA Neurology states that environmental pollutants such as pesticides has been linked to ALS and may represent modifiable ALS disease risk factors. Researchers at the University of Michigan studied occupational …
ALS Drug Development Guidance Available for Comment
Make Your Voice Heard We are happy to announce that the first draft of the community-driven FDA Guidance on ALS drug development is available for your review and comment. In our April e-newsletter, we shared the exciting news that the …
Registration Open: 2016 ALS Walk for Life
The 2016 ALS Walk for Life will be held on Sunday, September 18 at Soldier Field in Chicago and you can be one of the first to register. Join over 7,000 people at Chicago’s largest gathering for people living with …
International Alliance of ALS/MND Associations Update
The International Alliance of ALS/MND Associations has recently revised the guideline on the fundamental rights of people living with ALS/MND. These rights for people living with ALS/MND have been created to represent ideal conditions for those living with the disease …
Strike Out ALS 5k: Participant Spotlight
Meet Emily Gunty. Each month Emily and her father run at least one race together – most of which have a charitable component. For the past few years they have participated in the Strike Out ALS 5k despite having no …
Be an Advocate this May
May is national ALS Awareness Month and you can be an ALS Awareness Advocate! Each of us has been affected by ALS in different ways, but we are all advocates for finding treatments and a cure. Together, we can increase …
