Many people living with ALS find that their sleep is disrupted. But that disruption of their body’s 24-hour circadian rhythms might not just be a symptom of the disease. Researchers have found that this disrupted sleep actually contributes to the …
Hope Through Caring Silent Auction is Live
Our Silent Auction is Live! Whether you’re a sports fan eager to feel the electric energy of a live game, an adventurer looking for an unforgettable escape, or an art lover desiring to enhance your space with beautiful pieces, our Hope …
April 2024 Foundation eNews
Last Chance to Register: A Hall of Fame Celebration at the Hope Through Caring Gala There’s nothing like the warmth and camaraderie of the ALS community, and it’s time to cheer for one of our own. At the 36th annual …
Understanding the connection between the immune system and ALS
Using cutting-edge techniques, researchers at the Les Turner ALS Center at Northwestern Medicine are working to test an innovative hypothesis: that the immune system is involved in the breakdown of the connection between the brain and muscles in people with …
Up to the Challenge: The Hernandez Family
Caring makes the difference. For Mario Hernandez, it starts with his daughters Jenny and Emily. “My daughters are two angels that God gave me, to support me in this moment of what I’m going through right now,” says Mario. …
5 Tips for Eating with ALS
It’s never too early to focus on your diet after an ALS diagnosis. It’s important to note that it takes more energy to move and breathe with ALS, so you’re burning more calories at rest than people who do not …
March 2024 Foundation eNews
A Full House for the Hope Through Caring Gala Don’t miss your chance to join the Les Turner ALS Foundation for a night of dinner, dancing, and hope at the Hope Through Caring Gala! Advance ticket sales close on March …
The Keldani Family Fights On
Susan Keldani won’t slow down. At the age of 60, she’s a prolific fundraiser for ALS care and research, the mother of college-age triplets, and the owner of a busy intermodal trucking company. Managing a business alongside the ever-present …
Relyvrio/AMX0035 Phase 3 Clinical Trial Results Announced
UPDATE: Amylyx Pharmaceuticals has announced that Relyvrio will be removed from the market, and that patients on the therapy as of April 4 in the U.S. and Canada who, in consultation with their physician, wish to continue can be transitioned …
ALS organizations come together to advocate for FY25 funding priorities to Congress
Delivered to the offices of Sen. Patty Murray and Sen. Susan Collins on the U.S. Senate Committee on Appropriations, and the offices of Rep. Kay Granger and Rep. Rosa DeLauro on the U.S. House Committee on Appropriations. March 5, 2024 …
