October 2023 Foundation eNews

Ashley RosenbrockFoundation eNews, Home Page

Our 17th Annual Casino Night is Almost Here

Step into a night of excitement at the 17th annual All In For ALS Casino Night on Saturday, Nov. 4, from 7-11 p.m. at the East Bank Club in Chicago. Immerse yourself in the thrill of live blackjack, roulette, and craps while supporting the Les Turner ALS Foundation—the leader in comprehensive ALS care in Chicagoland.

Join us in a lively atmosphere filled with auction bidding, delectable appetizers, and memorable moments captured at the photo area. Many Young ProfessionALS Group (YPG) members and attendees have been personally touched by ALS, making this event a powerful gathering to contribute to vital ALS care and research.

Your generosity directly impacts the lives of those with ALS, ensuring they live with both quality and dignity. Be a part of the cause—100% of the event’s proceeds go to the Les Turner ALS Foundation. Get your tickets here. 

Donor Spotlight: The Drury Family


Every ALS journey is unique, and John Drury’s story began with a subtle sign—his struggle with music. “Welsh men were famous for their singing,” remembers his widow, Ann. “When he had trouble singing, we knew something was wrong.”

A revered Chicago news anchor, John faced ALS with resilience, devoting himself to raising awareness and funds for ALS care and research. The Les Turner ALS Foundation became an invaluable source of support for him and Ann.

Today, Ann and the Drury family are among the Foundation’s most dedicated supporters. In memory of John’s enduring spirit, his grandson, Dominick, ran the Chicago Marathon with Team Race for ALS last fall.


Join us at the Les Turner Symposium on ALS

Unlock the latest insights on causes of ALS and targeted therapies with Dr. Evangelos Kiskinis at the upcoming Les Turner Symposium on ALS, happening virtually and in-person on Monday, Nov. 6 at Northwestern Memorial Hospital in Chicago.

Delve into the intricacies of ALS causes and discoveries as Dr. Kiskinis demystifies the impact of faulty genes and nerve functions. He’ll tackle the mysteries behind TDP43 dysfunction and its crucial role in current ALS research. The symposium also features talks from a host of ALS clinicians, scientists, people living with ALS, and more.


Guide Spotlight: ALS + Home Modifications

Despite the progression of ALS, the home you love today can still meet your family’s needs down the road. Our comprehensive guide provides invaluable insights to make your space more accessible and comfortable.

While no two sets of circumstances for someone living with ALS are the same, there’s a wealth of knowledge and experience we’ve collected from them, their caregivers and our care team. Topics include: lift, elevator, and ramp options, along with door, hallway, and bathroom best practices for your living space.

ALS Learning Series: Ethical Principles + Informed Consent in ALS Research

Ever wondered about the crucial role of informed consent in research?

Mark your calendars for Thursday, Oct 26, from 12:00 – 1:00 p.m. CDT, as we present our ALS Learning Series featuring Emma Schmidt, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine.

Explore the history and significance of informed consent, unravel the process, understand your rights as a research participant, and gain a toolkit of insightful questions for those considering research participation.

This webinar is graciously sponsored by the Gilbert & Jacqueline Fern Foundation, Mitsubishi Tanabe Pharma America, and Biogen.