October 2024 Foundation eNews

Ashley RosenbrockFoundation eNews, Home Page

Advancing research and care at the Les Turner ALS Symposium

Join us for the 14th Annual Les Turner Symposium on ALS on Monday, November 4. Held at Northwestern Medicine, this event will feature leading ALS researchers, clinicians, and advocates discussing the latest in ALS research and care. Whether you attend in person or virtually, it’s an opportunity to engage with experts and ask questions about the future of ALS treatment and care.

This year’s keynote speaker is Angela Genge, MD, a renowned leader in ALS clinical trial design and development.

Don’t miss this chance to connect with the ALS community and learn about leading-edge research. Click here to register and view the agenda.

We’re adding a Newly Diagnosed group

 

Dr. Senda Ajroud-Driss has been honored as the Les Turner ALS Foundation / Herbert C. Wenske Professor at Northwestern University Feinberg School of Medicine. An endowed professorship is the highest academic honor that a faculty member can attain.

Born in Tunisia, Dr. Ajroud-Driss completed her medical education and training in Chicago, joining the faculty of Northwestern University in 2005. As the Director of the Lois Insolia ALS Clinic, she has dedicated her career to advancing ALS care and research. Dr. Ajroud-Driss has expanded the neuromuscular clinical research program at Northwestern and played a pivotal role in gene therapy development, leading to innovative treatments for hereditary neuromuscular disorders.

We are proud to announce this well-deserved recognition of her outstanding contributions to ALS research and her commitment to improving the lives of people living with ALS through her work at the Les Turner ALS Center at Northwestern Medicine. This professorship was created in 2005 through the generosity of the Les Turner ALS Foundation and the Herbert C. Wenske Foundation.

Read the full announcement.

Come cheer for Team Race for ALS!

Join us on Sunday, October 13, at Grant Park as we cheer on Team Race for ALS in the Chicago Marathon! Our incredible runners aren’t just racing to the finish line—they’re racing to find a cure for ALS.

By participating in this world-class event, our runners are helping the Les Turner ALS Foundation continue its mission to provide comprehensive care and support to people living with ALS and their families, and to advance groundbreaking scientific research.

With 50,000 runners expected at the 2024 Chicago Marathon, come out and show your support for Team Race for ALS as they race to make a difference. Let’s cheer them on to victory! Learn more and donate to one of our team runners at the link.

Join us for a webinar on alternative and complementary therapies

Don’t miss the October ALS Learning Series with Dr. Jinny Tavee, who will cover complementary and alternative therapies for people living with ALS. Dr. Tavee will highlight the impact of nutrition, exercise, and mind-body therapies in enhancing well-being, followed by a Q&A session to explore these holistic approaches further.

As Chief of Neurology at National Jewish Health, Dr. Tavee has a strong focus on integrative medicine and has recently completed a clinical trial on yoga breathing for people living with ALS.

This webinar is offered at no cost to the ALS community, thanks to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America.

Register now at the link.

Spotlight: ALS & Participation in Clinical Research

People living with ALS, along with their families and caregivers, play a critical role in advancing ALS research. Our guide, ALS + Participation in Clinical Research, explains how you can help scientists and doctors develop new treatments by participating in a clinical research study. This guide is also available in Spanish

This guide covers the different types of research, including clinical trials, observational studies, and expanded access programs. It also outlines the benefits of participating, the phases of clinical trials, and how to decide if research is right for you. Your participation can make a significant impact, and ALS research needs diverse voices and perspectives.

Explore how you can contribute to ALS research and discover if clinical research is the right path for you. Click the link to read the guide.