Advancing research and care at the Les Turner ALS Symposium
Join us for the 14th Annual Les Turner Symposium on ALS on Monday, November 4. Held at Northwestern Medicine, this event will feature leading ALS researchers, clinicians, and advocates discussing the latest in ALS research and care. Whether you attend in person or virtually, it’s an opportunity to engage with experts and ask questions about the future of ALS treatment and care.
This year’s keynote speaker is Angela Genge, MD, a renowned leader in ALS clinical trial design and development.
We are excited to announce the creation of a second Newly Diagnosed ALS Support Group. An ALS diagnosis can be overwhelming, leaving many feeling shocked and unsure of what comes next. This support group is designed to provide a compassionate, relaxed virtual environment where individuals who have been diagnosed with ALS in the last six months can connect and share their experiences.
Meeting the first Tuesday of every month starting in October, this group offers an opportunity to build a community, ask questions, and receive support. Facilitated by Cara Gallagher, MA, LCPC, participants will gain insights and encouragement as they navigate their ALS journey.
Click the link to learn more about this, and our other support groups!
Join us on Sunday, October 13, at Grant Park as we cheer on Team Race for ALS in the Chicago Marathon! Our incredible runners aren’t just racing to the finish line—they’re racing to find a cure for ALS.
By participating in this world-class event, our runners are helping the Les Turner ALS Foundation continue its mission to provide comprehensive care and support to people living with ALS and their families, and to advance groundbreaking scientific research.
With 50,000 runners expected at the 2024 Chicago Marathon, come out and show your support for Team Race for ALS as they race to make a difference. Let’s cheer them on to victory! Learn more and donate to one of our team runners at the link.
Don’t miss the October ALS Learning Series with Dr. Jinny Tavee, who will cover complementary and alternative therapies for people living with ALS. Dr. Tavee will highlight the impact of nutrition, exercise, and mind-body therapies in enhancing well-being, followed by a Q&A session to explore these holistic approaches further.
As Chief of Neurology at National Jewish Health, Dr. Tavee has a strong focus on integrative medicine and has recently completed a clinical trial on yoga breathing for people living with ALS.
This webinar is offered at no cost to the ALS community, thanks to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America.
Spotlight: ALS & Participation in Clinical Research
People living with ALS, along with their families and caregivers, play a critical role in advancing ALS research. Our guide, ALS + Participation in Clinical Research, explains how you can help scientists and doctors develop new treatments by participating in a clinical research study. This guide is also available in Spanish
This guide covers the different types of research, including clinical trials, observational studies, and expanded access programs. It also outlines the benefits of participating, the phases of clinical trials, and how to decide if research is right for you. Your participation can make a significant impact, and ALS research needs diverse voices and perspectives.
