Your support of the Les Turner ALS Foundation is felt by people living with ALS, caregivers, families and loved ones everywhere. By making a donation or volunteering your time, you helped ensure they had the support they needed – and you brought all of us closer to a world free of ALS.
In 2022, this is how we turned your support into action.
- We helped organize and lead collaborative efforts across ALS organizations that resulted in two new drugs approved by the FDA to slow ALS progression – the first drugs approved since 2017.
- We provided leadership for the new ALS Strategic Plan developed by the National Institutes of Health and National Institute of Neurological Disorders and Stroke.
- We expanded our leadership by adding two people living with ALS to our board of directors and five people living with ALS and caregivers to our Support Services Committee, ensuring that our work will always be informed and directed by the community we serve.
- We offered 19 clinical trials and research studies this year, including the HEALEY ALS Platform Trial, and three expanded access programs at the Lois Insolia ALS Clinic at the Les Turner ALS Center.
- We launched the Foundation’s first personalized medicine research program at the Les Turner ALS Center.
- We distributed 106 needs-based grants to help cover the cost of equipment, respite care and transportation for people living with ALS and caregivers.
- Nearly 60 people per month found solace and shared experiences in our support groups.
- Our monthly ALS Learning Series webinars have had nearly 10,000 views since launch in fall 2020; in 2022, experts discussed home modifications, financial planning, Medicare and more.
- We provided shared decision-making support for breathing and nutrition issues through the My ALS Decision Tool™, which has more than 5,000 website views since launch in Nov. 2021.
- We published three new, best-in-class ALS information guides on critical topics for people living with ALS, caregivers and families.
- 3,310 new donors made first-time contributions in 2022, becoming part of a strong and rapidly-growing base of support for our programs.
- We signed the largest five-year gift agreement in the Foundation’s history, for a total of $750,000 restricted to support services.
- Pageviews of educational resources, ALS information guides, news and more on lesturnerals.org increased by 93% over 2021, making 2022 the busiest year in the website’s history — with the most visits ever recorded in a single day (Sept. 23)
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