Under a new directive from the Centers for Medicare and Medicaid Services (CMS), Medicare Advantage plans are now required to cover QALSODY® (tofersen), Biogen’s recently-approved treatment for people living with SOD1-ALS. We strongly support this new directive. Study results suggest …
When lives are on the line
Bryan Szymczak has always run toward danger. For 26 years, he fought fires in cities across Illinois, until an ALS diagnosis forced him into early retirement. It began with a weakness in his right thumb, which he chalked up to …
2024 Gift Guide for People Living With ALS and Caregivers
Haga clic aquí para leer este artículo en español. Discover thoughtful and practical gift ideas in our Gift Guide for People Living with ALS, developed with the help of …
Faces of ALS: A Veteran Nurse’s Journey of Service and Strength
Connie Daniels has dedicated much of her life to caring for others. Born at St. Luke’s Hospital in 1946, she grew up on the South Side of Chicago. The oldest girl in a family of six, Connie always wanted to …
National Institute on Aging invests an additional $7.3 million into NU-9
With its ability to improve neuron health, experimental drug NU-9 has already shown promise in reversing amyotrophic lateral sclerosis (ALS). Now, the National Institute on Aging (NIA) has provided approximately $7.3 million to fund exploration into the Northwestern University-invented drug’s …
Walker Wednesday #7
Know Before You Go Can you believe the ALS Walk for Life is only three days away? We are so excited to see everyone again at Soldier Field so soon. From everyone at the Foundation, thank you so much for …
Walker Wednesday #6
Crunch Time Fundraising On-The-Go With only ten days left till the Les Turner ALS Walk for Life, the countdown starts now for a final push for fundraising. Luckily, there are many ways to quickly spread the word and take your …
Walker Wednesday #5
Celebrate Your Success With Fundraising Prizes Encourage your team to level up their fundraising to earn more exciting fundraising prizes. Fundraising incentive prizes are cumulative, so those who raise over $1,000 will receive all four prizes. Email us if you have …
Les Turner ALS Center at Northwestern Medicine and Sean M. Healey & AMG Center for ALS Establish Acceleration Centers of Enrollment Initiative
Together with the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital, the Les Turner ALS Center at Northwestern Medicine is thrilled to announce the launch of the Acceleration Centers of Enrollment (ACE) initiative. The ACE initiative …
Walker Wednesday #4
You Decide This Year’s Walk Shirt! You have the power to decide the design for this year’s ALS Walk for Life t-shirt. Forward this email to your friends and family for them to vote. The poll will close next Wednesday, …
