A recent publication in Neurology Today highlights the research of Dr. Sabrina Paganoni who is testing a drug to slow the progression of ALS. This study is being done in collaboration with Les Turner ALS Research and Patient Center at Northwestern Medicine …
Evidence for an early innate immune response in the motor cortex of ALS.
A new publication about the role of immunity in ALS, authored by members of the Les Turner ALS Research and Patient Center at Northwestern Medicine, has been issued. Read on for a Q&A with Dr. P. Hande Ozdinler, one of …
Join the ALS Registry
In the next year alone, about 5,000 people in the U.S. may be diagnosed with #ALS. The National #ALSRegistry is connecting persons living with ALS with researchers who want to find the causes of the disease, help those diagnosed, and …
Investing in our Future: Funding ALS Research
Each year, the Les Turner ALS Foundation provides a grant to the Les Turner ALS Research and Patient Center at Northwestern Medicine. This grant provides support to the Lois Insolia ALS Clinic as well as researchers looking for answers on …
Radicava FAQs
Les Turner ALS Research and Patient Center at Northwestern Medicine On May 5, the FDA approved a new drug to treat ALS. Radicava™ (also known as Edaravone) is the first approved ALS-specific drug since Riluzole, which was approved 22 years …
New Gene Identified in ALS
(May 15, 2017)- For the first time, a variant in UBQLN4 gene has been associated with Lou Gehrig’s disease or amyotrophic lateral sclerosis (ALS) – a progressive disease resulting in the loss of nerve cells that control muscle movement, which …
MT Pharma America Announces FDA Approval of RADICAVA™ (Edaravone)
Just today, we learned the FDA has approved the first new drug for ALS in 22 years! The new drug is called Radicava and has been demonstrated to slow decline of physical function by 33 percent. The timing of this …
The National ALS Biorepository Launched – “Learn How to Participate”
One of the questions that people living with ALS often ask is – what can I do to help ALS Research? ALS patients can do that, with a personal contribution to the National ALS Registry (Registry) – in the newly …
PALS Webinar: How Professionals Can Help Kids in ALS Families
On April 5, our Director of Social Services, Laurie B. Fieldman, LCSW, led a Northeast ALS Consortium (NEALS) webinar, sharing her expertise on how to minimize the impact on children in ALS families. Many professionals don’t get the opportunity to …
2017 ALS News You Can Use
This past Sunday, March 19, the Foundation hosted our annual educational meeting that covered the latest on ALS research and patient care from experts in the field. Over 40 people including staff and board members, people living with ALS and …
