International Symposium on ALS/MND
Jack Rooney December 2016 Over 1,100 researchers and clinicians from around the world attended the annual meeting in December in Ireland to learn about trends in ALS care and research. The Foundation’s executive director along with six members from the …
College Student and Team Race for ALS Member Runs to Honor Dad
Since Julian first learned his father had ALS, he put his efforts into running, first at Brother Rice High School and now as a freshman on St. Xavier’s cross-country team. As a member of Team Race for ALS, he ran …
Healthy Diets May Be Associated With Better Function in ALS Patients
Diets rich in fruits and vegetables may be associated with better function, including respiratory, in ALS patients, according to a new study. The study, “Association Between Dietary Intake and Function in Amyotrophic Lateral Sclerosis”, was published in the journal JAMA …
A Time for Thanks: November is National Caregivers Month
In support of National Family Caregivers Month, The Les Turner ALS Foundation highlights Sherlyn Brubeck: caregiver of her husband, Ryan Brubeck, PALS and friend of the Foundation. ALS not only drastically alters the patient’s life; it also transforms the lives …
Celebrating 30 Years: The Lois Insolia ALS Clinic at Northwestern
The Lois Insolia ALS Clinic at Northwestern Medicine has continuously provided total care and support of people with ALS, their families and their caregivers for the last 30 years. During those three decades, the Lois Insolia ALS Clinic has received support …
Dr. Ozdinler Invited to Speak at the Nobel Forum in Stockholm, Sweden
Dr. Hande Ozdinler was recently invited to speak at the Nobel Forum Karolinska Instituetet in Stockholm Sweden which took place in early September. The title of her abstract which was chosen as a platform discussion was, “Unfolded proteins: from basic …
FDA Accepts New Drug Application Filing for Edaravone to Treat ALS
Mitsubishi Tanabe Pharma Corporation has announced that the FDA accepted the company’s New Drug Application for edaravone (MCI-186) which is an intravenous treatment for ALS. Based on the Prescription Drug User Fee Act, a decision is expected to be made …
ALS Walk for Life Sponsor Announces New Collaboration
The Les Turner ALS Foundation is happy to share great news about one of our ALS Walk for Life event sponsors, Cytokinetics. The drug development company has finalized a deal to collaborate with global pharma company, Astellas to conduct further research …
National ALS Registry Updates
As proud partners of the National ALS Registry, Les Turner ALS Foundation Executive Director, Andrea Pauls Backman and Director of Patient Services, Judy Richman, attended the Annual Agency for Toxic Substances and Disease Registry (ATSDR) Meeting in Atlanta this week. …
