Les Turner ALS Research and Patient Center at Northwestern Medicine On May 5, the FDA approved a new drug to treat ALS. Radicava™ (also known as Edaravone) is the first approved ALS-specific drug since Riluzole, which was approved 22 years …
New Gene Identified in ALS
(May 15, 2017)- For the first time, a variant in UBQLN4 gene has been associated with Lou Gehrig’s disease or amyotrophic lateral sclerosis (ALS) – a progressive disease resulting in the loss of nerve cells that control muscle movement, which …
MT Pharma America Announces FDA Approval of RADICAVA™ (Edaravone)
Just today, we learned the FDA has approved the first new drug for ALS in 22 years! The new drug is called Radicava and has been demonstrated to slow decline of physical function by 33 percent. The timing of this …
The National ALS Biorepository Launched – “Learn How to Participate”
One of the questions that people living with ALS often ask is – what can I do to help ALS Research? ALS patients can do that, with a personal contribution to the National ALS Registry (Registry) – in the newly …
April Special Events eNewsletter
Want to stay updated about the latest Foundation events? Subscribe to our mailing list to receive monthly eNewsletters. Read our April Edition to learn more.
April Foundation eNewsletter
Want to stay updated about the latest Foundation news? Subscribe to our mailing list to receive monthly eNewsletters. Read our April Edition to learn more.
Comcast Newsmakers Features Foundation
May is national ALS Awareness month! We need your help to spread the word about the effects of ALS and the Foundation’s role of providing hope and help to those impacted by the disease. Our Executive Director, Andrea Pauls Backman, …
PALS Webinar: How Professionals Can Help Kids in ALS Families
On April 5, our Director of Social Services, Laurie B. Fieldman, LCSW, led a Northeast ALS Consortium (NEALS) webinar, sharing her expertise on how to minimize the impact on children in ALS families. Many professionals don’t get the opportunity to …
2017 ALS News You Can Use
This past Sunday, March 19, the Foundation hosted our annual educational meeting that covered the latest on ALS research and patient care from experts in the field. Over 40 people including staff and board members, people living with ALS and …
Les Turner ALS Foundation Celebrates Nearly $700,000 Raised at Annual Gala
The Les Turner ALS Foundation, a 30+ year philanthropic partner of Northwestern University Feinberg School of Medicine, held its annual “Hope Through Caring” Gala on February 25 at the Loews Hotel Chicago. This year’s sold-out event of over 500 people …
