The Les Turner ALS Foundation is happy to share great news about one of our ALS Walk for Life event sponsors, Cytokinetics. The drug development company has finalized a deal to collaborate with global pharma company, Astellas to conduct further research …
National ALS Registry Updates
As proud partners of the National ALS Registry, Les Turner ALS Foundation Executive Director, Andrea Pauls Backman and Director of Patient Services, Judy Richman, attended the Annual Agency for Toxic Substances and Disease Registry (ATSDR) Meeting in Atlanta this week. …
Every August Until A Cure
In August 2014, a viral phenomenon took over social media feeds across the globe with people accepting the ALS Ice Bucket Challenge. Friends challenging friends, patients challenging celebrities and teenagers challenging grandparents to douse themselves with ice cold water while …
Racing for Awareness
Since Derek Hogg was diagnosed with ALS in 2013, he has become a staple at the Les Turner ALS Foundation’s Strike Out ALS 5k. Whether running, using his son’s stroller for support or peddling a special recumbent bike, Derek defines …
Community: The Newsletter of the Les Turner ALS Foundation
Each year, the Les Turner ALS Foundation creates a print newsletter in July and November to highlight the various ways Hope and Help for people living with ALS is displayed in Chicagoland, and across the country. Issue I of Community …
From Generation to Generation: Embodying the True Spirit of “Paying it Forward”
While out on a bike ride, Barrington community member Bob Lee came up with an idea called the Ride for 3 Reasons after being inspired by Mitch Albom’s Tuesdays with Morrie. During 12,000 mile journey across the country, Bob had …
March of Faces Banner
Honor a loved one by including them on a March of Faces banner. The banners travel with the Foundation and are displayed at various events throughout the year as a way to recognize those we have lost to ALS despite …
Personalize Your Care Act
Take action and urge your Representative to support the Personalize Your Care Act (PYCA)! This act was introduced by Earl Blumenauer (D-OR) and Rep. Phil Roe (R-TN) in the US House of Representatives to increase accessibility to and public awareness …
Senate votes to pass amendment to the National Defense Authorization Act
The Les Turner ALS Foundation is pleased to announce that, this week, the Senate voted to pass Senator Dick Durbin’s (D-IL) amendment to the National Defense Authorization Act to protect crucial medical research programs for ALS funded by the Department …
Today’s Caregiver: 5 Lessons I Have Learned From Being A Young Caregiver For My Husband With ALS
Wife of PALS, Sherlyn Brubeck recently shared the five lessons she has learned from being a caregiver to her husband with Today’s Caregiver. Since being diagnosed with ALS in 2014, Sherlyn has become her husband’s primary caregiver. To read the …
