As connecting fibers between motor neurons, axons help deliver vital messages between the brain and the spinal cord. For people living with ALS, deteriorating axons cause that connection to break, contributing to paralysis and death. Early research on NU-9, an …
Faces of ALS: Eloise Nilges
A Lasting Legacy of Love, Faith, and Adventure Recently, Terri experienced her first Mother’s Day without her mom, Eloise. In this month’s “Faces of ALS,” we learn more about Eloise’s journey with ALS and how Terri continues to honor her …
Breaking News: FDA Approves Oral Edaravone
This story has been updated with a link to the informational webinar about the new medication. The U.S. Food and Drug Administration has approved RADICAVA ORS®, an oral form of edaravone that reports the same efficacy as RADICAVA® for intravenous infusion. …
May 2022 Events eNews
Events News Runners, Walkers, and Rollers – It’s Time to Strike Out ALS on July 21! Registration for our Strike Out ALS 5k and 1 Mile Run, Walk & Roll is now open – let’s celebrate summer together at …
May 2022 Foundation eNews
Foundation News Hope Through Caring Gala – Last Chance to Purchase Tickets! We’re less than three weeks away from the Hope Through Caring Gala! We’re excited to celebrate with the ALS community and honor three incredible individuals for their …
Faces of ALS: Anita Forté
Anita Forté – Fighting ALS with Positivity and Gratitude After having dealt with multiple ailments the past few years, along with ALS, there’s no doubt that Anita Forté is a fighter. She wakes up each morning and starts the day …
April 2022 Events eNews
Events News The Hope Through Caring Gala is Almost Here! That’s right, our annual Hope Through Caring Gala is just over a month away. If you’re just as excited as we are, purchase your tickets now! We have plenty …
April 2022 Foundation eNews
Foundation News Historic FDA Advisory Committee On Wednesday, March 30, an FDA Advisory Committee voted 6 to 4 that the current data on Amylyx Pharmaceuticals’ investigational treatment AMX0035 does not support it as an effective treatment for ALS. While …
Research News from the Les Turner ALS Center at Northwestern Medicine
The 40+ research scientists at the Les Turner ALS Center at Northwestern Medicine investigate a wide range of biologic mechanisms in ALS basic research. We are pleased to announce the recent publication of three new research papers from some of …
Our Oral Testimony to the FDA Advisory Committee on the Approval of AMX0035
Open Public Hearing FDA Advisory Committee on AMX0035 March 30, 2022 Good afternoon. My name is Andrea Pauls Backman, CEO of the Les Turner ALS Foundation. My only disclosure is that the Les Turner ALS Foundation receives less than 2% …
