As connecting fibers between motor neurons, axons help deliver vital messages between the brain and the spinal cord. For people living with ALS, deteriorating axons cause that connection to break, contributing to paralysis and death. Early research on NU-9, an …
Faces of ALS: Eloise Nilges
A Lasting Legacy of Love, Faith, and Adventure Recently, Terri experienced her first Mother’s Day without her mom, Eloise. In this month’s “Faces of ALS,” we learn more about Eloise’s journey with ALS and how Terri continues to honor her …
Breaking News: FDA Approves Oral Edaravone
This story has been updated with a link to the informational webinar about the new medication. The U.S. Food and Drug Administration has approved RADICAVA ORS®, an oral form of edaravone that reports the same efficacy as RADICAVA® for intravenous infusion. …
May 2022 Events eNews
Events News Runners, Walkers, and Rollers – It’s Time to Strike Out ALS on July 21! Registration for our Strike Out ALS 5k and 1 Mile Run, Walk & Roll is now open – let’s celebrate summer together at …
May 2022 Foundation eNews
Foundation News Hope Through Caring Gala – Last Chance to Purchase Tickets! We’re less than three weeks away from the Hope Through Caring Gala! We’re excited to celebrate with the ALS community and honor three incredible individuals for their …