We’re Empowering the ALS Community with New Resources and Tools This month, we’re celebrating ALS Awareness Month by announcing groundbreaking new resources that empower people living with ALS and their families. Firstly, we’ve released a new guide, ALS & Participation in …
Introducing My ALS Decision Tool™ on Genetic Counseling and Testing for Family Members
As a registered nurse, Tina Cascio cared for several people diagnosed with ALS, including her own mother, Pamela. Prior to her mother’s passing, Tina began to experience symptoms that were eerily familiar. “I started having muscle spasms and twitching in …
To find the cause of ALS, researchers look to metabolism within motor neurons
As researchers at the Les Turner ALS Center at Northwestern Medicine search for the root causes of ALS, they are examining processes within the body — even down to the cellular level. In fact, recent research has shown that people …
Introducing the ALS & Participation in Clinical Research Guide
As the field of ALS research evolves, opportunities arise to participate in clinical trials and research studies that could lead to new treatments and insights into the disease. At the Les Turner ALS Foundation, we want to empower people living with …
5 Things to Know for New ALS Caregivers
An ALS diagnosis can change someone’s life overnight. Becoming an ALS caregiver, however, is a role and an identity that you grow into. Caring for a loved one with ALS can be extremely challenging, but it can also be very …
May 2024 Foundation eNews
It’s ALS Awareness Month! Creating a world free of ALS takes all of us. Throughout the month of May, we’ll spotlight people doing great work to raise funds and awareness, and we’ll share actionable ways you can make an impact in …
Letter: The Neuromuscular Disease Community Supports Swift Enactment of the FAA Reauthorization Act of 2024
Letter sent to Congress on May 3, 2024 Dear Speaker Johnson, Minority Leader Jeffries, Majority Leader Schumer, and Minority Leader McConnell; In service of the approximately 300,000 Americans living with a neuromuscular disease, for whom we collectively serve, the undersigned …
Harnessing the power of stem cells to find the drivers behind sporadic ALS
To better understand the molecular mechanisms that underlie ALS, researchers at the Les Turner ALS Center at Northwestern Medicine are harnessing the power of one of the 21st century’s most powerful medical tools: stem cells. In the lab of Evangelos …
