Under a new directive from the Centers for Medicare and Medicaid Services (CMS), Medicare Advantage plans are now required to cover QALSODY® (tofersen), Biogen’s recently-approved treatment for people living with SOD1-ALS. We strongly support this new directive. Study results suggest …
December 2024 Foundation eNews
Empowering choices: Watch our new video on clinical research Deciding whether to join a clinical research study is a personal and significant choice for people living with ALS. To help empower these decisions, we’ve created a new video featuring Emma Schmidt …
Introducing the New Participating in Clinical Research Tool
Deciding whether to participate in clinical research is a pivotal step for people living with ALS and their families. It’s a process often filled with important questions about risks, benefits, and expectations. Clear and reliable information is essential to empower …
November 2024 Foundation eNews
November is National Family Caregivers Month This month, take a moment to honor the dedication and resilience of caregivers who provide vital support for their loved ones living with ALS. At the Les Turner ALS Foundation, we recognize the unique …
When lives are on the line
Bryan Szymczak has always run toward danger. For 26 years, he fought fires in cities across Illinois, until an ALS diagnosis forced him into early retirement. It began with a weakness in his right thumb, which he chalked up to …
2024 Gift Guide for People Living With ALS and Caregivers
Haga clic aquí para leer este artículo en español. Discover thoughtful and practical gift ideas in our Gift Guide for People Living with ALS, developed with the help of …
November 2024 Foundation eNews
It’s almost time to get your chips on the table for All in for ALS Casino Night Join us for the 18th annual All In for ALS Casino Night on Saturday, Nov. 23 at the East Bank Club in Chicago! This …
Faces of ALS: A Veteran Nurse’s Journey of Service and Strength
Connie Daniels has dedicated much of her life to caring for others. Born at St. Luke’s Hospital in 1946, she grew up on the South Side of Chicago. The oldest girl in a family of six, Connie always wanted to …
National Institute on Aging invests an additional $7.3 million into NU-9
With its ability to improve neuron health, experimental drug NU-9 has already shown promise in reversing amyotrophic lateral sclerosis (ALS). Now, the National Institute on Aging (NIA) has provided approximately $7.3 million to fund exploration into the Northwestern University-invented drug’s …
October 2024 Foundation eNews
Pioneering progress at the Les Turner Symposium on ALS Join us online or in person next Monday, Nov. 4, for the 14th Annual Les Turner Symposium on ALS. This is your chance to hear from top ALS researchers, clinicians, and advocates …
