On Monday October 17, 2022, the U.S. Food and Drug Administration announced it has awarded 19 new grants and two new contracts totaling more than $38 million in funding over the next four years to support clinical trials, natural history …
October 2022 Foundation eNews
Foundation News Register for NINDS ALS Strategic Planning Workshop Tomorrow, the draft of the National Institute of Neurological Disorders and Stroke (NINDS) ALS Strategic Plan, is being made available to the public. The Les Turner ALS Foundation has been an …
Faces of ALS: Finding new joy following an ALS diagnosis
Tony Caruso was a busy OB-GYN who delivered hundreds of babies each year. So, it was no surprise when he began to notice symptoms of what he assumed was carpal tunnel syndrome. “I had these symptoms on and off for …
October 2022 Foundation eNews
Foundation News The 2022 ALS Walk for Life was a success because of you! The 21st annual ALS Walk for Life was a huge success. And we have the photos – and figures – to prove it. We loved seeing …
Donor Spotlight: Foglia Family Foundation
As a lifelong baseball fan, Vince Foglia knew about ALS after having heard Lou Gehrig’s famous speech announcing that he had the disease. “ALS had always grabbed my attention because it is a cruel disease for which there is no …
FDA Approves AMX0035 (RELYVRIO™) for Treatment of ALS
The FDA’s decision to approve Amylyx Pharmaceuticals’ therapeutic compound AMX0035 for treatment of ALS was fully justified by the data and the science. Clinicians, researchers, advocacy groups, and people living with ALS spoke in overwhelming numbers in favor of approval. …
Faces of ALS: Channeling Mom’s Positivity in the Face of Familial ALS
As a healthcare worker, Tina cared for people diagnosed with ALS, including her mother. Prior to her mom’s passing in 2018, Tina started to experience symptoms that were eerily familiar. “Towards the end of my mother’s battle with ALS, I began …
Newly published data on tofersen shows success in treating SOD1-ALS
New results published this week provide further evidence that tofersen, a drug in development by Biogen, may be effective in slowing the progression of SOD1-ALS. As reported in the New England Journal of Medicine, the Phase 3 clinical trial (VALOR) …
September 2022 Foundation eNews: ALS Walk for Life!
Foundation News These people are unstoppable. The ALS Walk for Life brings together thousands of walkers who have dedicated their time to helping people living with ALS. We’re excited to gather with the ALS community and raise much needed …
September 2022 Foundation eNews
Foundation News ALS Walk for Life, Saturday, September 24! If this is your first ALS Walk for Life, you’re not alone. Suzanne will be participating in the Walk for the first time – and walking in memory of her …
